So I'm posting on behalf of my wife who is okay with me doing do. I'm just trying to gather information, ideas, support, really anything that may help us through this. I wish she would do this, but unfortunately she has no motivation to do so.
Seems my wife has always been accident prone. She is 29 now, but I can't tell you how many times she has been in the hospital and ER in her childhood and how many pairs of crutches and braces and things she has had. She also found out at 10-years-old that she has a high tolerance for pain medications and a low tolerance for pain when she dislocated a toe and the doctors had to keep giving her more and more Vicodin as it just wasn't having an effect on her.
This was her life until she turned 21, occasional accident, but besides a major car crash when she 17, nothing significant. When she was 21, after having several mis-carriages with her first husband, her baby had to be delivered by emergency c-section due to her having severe preeclampsia. This, it seems, is when things started going bad, or at least when symptoms started showing up. After the c-section, when things should have been all healed up, she started experiencing bad abdominal pain. After many tests and a lot of pain and ovarian cysts, it was finally diagnosed as endometriosis by a laparotomy. At the time, she wasn't married and didn't have good insurance. Unfortunately, she had a doctor who was willing to prescribe for her opiate pain medication by the hundreds every month, and as this was the only thing that proved to take the pain away, she was willing to take them. Needless to say, she became addicted to them.
When she lost this doctor, she came across a slew of doctors who wanted to tell her there was nothing wrong with her and refused to help. This caused her to rely on the ER for pain meds when the pain got bad. But of course that led to a different doctor every time, and sometimes they refused to help. So this led to using different hospitals and different pharmacies. And after a while it looked like she was doctor shopping. And honestly she was, shopping for a doctor who would actually help. It got to the point where some nights when the pain got so bad, she would be in-and-out of multiple ERs during the night, just to try and find some help. I'm sure there are some here who can relate.
We've been married almost 2 years, and I was able to get her decent health insurance since. I got her into an OB/GYN who is also an expert in endometriosis removal and she had an operation for it's removal a year ago. Thinking that was the the majority of the abdominal pain, we were hopeful that would allow her to take control of her life again. She ended up having more abdominal pain after the surgery then she had before. This OB/GYN, early on in the process, sent her to see a pain management colleague of his, since he wasn't able to control the pain sufficiently with what he felt comfortable prescribing her. This pain management doctor has been taking care of all of her meds since.
Once the pain after surgery didn't subside and nothing else seemed to work, the PM doctor decided she would be a good candidate for an intrathecal drug pump. She now has had this Medtronic pump since December, but yet again has more pain since the surgery and this pump is only providing minimal help. The doctor is now thinking she may also be a good candidate for a neurostimulator, but we are all kind of leery of having any more procedures done. Since that pump implantation, she has spent most of her time in bed as the meds make her too tired to get up and the pain makes it unbearable. This has caused muscle loss and weight gain, none of which help anything.
She's also been diagnosed with fibromyalgia, has bad insomnia, and a combination of everything is taking a toll on her mental health. She is on Lyrica, OxyCodone, Risperdal, Xanax, fentanyl patches, scopolamine patches, takes Natural Calm for the muscle spasms, as well as other meds.
Not sure what I'm looking for here, except maybe some ideas of where to go with all this or what to try, or even if anyone has experienced anything similar.