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SI Joint pain and scoliosis

LianneLLianne Posts: 3
edited 08/31/2014 - 12:52 PM in Sacroiliac (SI) Joint Problems
Hi all,

As mentioned in my intro post, i'm 32 years old and have congenital scoliosis. I had a lumbar fusion at the age of 13 and other than the usual daily aches and pains have been able to live a normal life up until around 2 years ago when I began to have severe lower back/hip/buttock/upper leg pain.

Before I found this site, I had xrays, MRIs, physio and consultant appointments which ruled out any obvious cause of my pain as far as disc or nerve damage, and was told that this was to be expected as I got older and to throw as many pain meds at it as possible to get me through flare ups. Being a midwife working 12 hour shifts, I didnt find this particularly helpful!!!

During researching my symptoms I came across this site and its description of SI joint dysfunction which was as if I had written the list of symptoms!! It was a huge relief to know that there could be an actual cause and therefore a possible solution!
However, pretty much all the info I can find is American, is anyone else here from the UK and successfully been diagnosed and treated here?
My GPs aren't wonderfully supportive and so i'm reluctant to go to them if this isn't something they're likely to have heard of as I know the response i'll get.

Any other info or tips anyone has will also be greatly appreciated :)



  • Lisa JoyLLisa Joy KentuckyPosts: 21
    I just had a consult with my surgeon this last week after having another ct scan this year. My surgeon said my scoliosis has gotten worse since my first scan in January. Since my insurance co won't approve surgery there is not much else I can do. Hope you get answers and find good drs who will listen and support you.

    Lisa Joy
    Lisa Joy

    Minor scoliosis, fusion of S1-L5-L4, discs replaced at L4/L5 and L5/S1 2007, spinal stenosis, degenerative disc disease, left and right SI Joint dysfunction with fractures along illiac crest, and vacuum phenomenon.
  • Although your GP may be unaware of SI joint problems a specialist will be experienced in diagnosing. You need another consult. If they believe that your SI joint is the pain generator they can give you injections. They first put in a numbing agent (diagnostic) & if you experience pain reduction they will inject steroids which will hopefully help for longer. I was told anywhere from weeks to several months.
    I know of someone who has had these done in the UK. I had it done last week in the USA. If you search 'SI joint injections UK' you will see many NHS hospitals & trusts that deal with SI joint problems. Good luck! ;-)
    Osteoarthritis & DDD.
  • Thankyou for your comments.

    Lisa i've read your post and my heart goes out to you, I really hope your surgery is approved soon and you can get some relief.

    Thanks EnglishGirl, i'll look into that further!!
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