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Mystry Pain Can someone Please help

MikewitneyMMikewitney Posts: 6
edited 09/06/2014 - 12:48 AM in Lower Back Pain
hi My Name Is Mike and i live in oxford UK let me give you a little background on me. i am a 45 year old male and was diagnosed with spina bifida occulta when i was 16. and scoliosis..... i have suffered from back pain all my life but always managed it with small painkillers. 4 years ago i started getting bad and had to have an operation to trim back the nerves the operation involved inserting needles in to my spin where the problem was and sending an electrical charge to burn them away. that worked great for about 4 months then the pain came back.

the problem in in my L4 and L5 area a few months later i had a MRI scan to show h had an herniated disk pressing on my nerves. so i was out in for a discectomy in the L4 and L5 Area. i woke up and was numb in my penis area the specialist said it would come back fine. after 2 years on morphine and fentanyl. the numbness got worse and now i have to catheterise my self 3 times a day. as the doctor says i got some nerve damage from the operation and after 3 years he don't think it will come back so i to deal with it for the rest of my life. i was also walking with the aid of crutches as of 2 months ago.

so there is my background

now my wife diane is diabetic and my main carerer, 2 months ago she needed the ambulance due to her sugars being way to low and passing out. i had to put her in to the recovery position. i felt somthing to pop and the pain was really bad.

i now can not put my right leg down or even lift it without extreme pain. my painkillers at the moment are
300mg gabapentin twice a day
100 mg tramadol 4 times a day
2x paracetamol 4 times a day
Nortriptyline 50 mg at night

after dealing with this and going to the docs to explain how bad it is and not really getting anywhere

i admitted my self to A and E at out local Hospital
explaining i can not walk at all due to the pain and even lying down any movement is making it really painful. the pain is all down my right leg and it will not allow me to put it down at all and even putting my left leg down is causing pain in my back in the L4&L5 Area

so i had an Xray ANd An MRI scan (which was very painful having to lie in that position for 15 mins). they had me on oramorph 15 ml 4 times a day and Diazepam 50 mg in the hospital. i was very sleepy but still could move in the hospital bed.

after the docs looked at the MRI scan. sh came back and said they can not find any evidence of any nerve compression and damage......... WHAT THE HELL????????

there is no way on this earth there is nothing wrong in there... for those who have dealt with this pain people can tell the difference between nerve pain and muscle pain and mine is nerve pain sciatic on my right side

i did manages to get out of the hospital bed of which i had been lay in for more than 24 hours. i stood up using my crutchess and within 5 mins of trying to walk around i got the almighty shock of pain again in my right hand side. i was on the floor in the hospital ward.

i said to them how the hell can you say there is nothing wrong in there when this is happening.

but they just let me go home as the doctor could not find anything.

i am now at home in my recliner chain writing this and just asking.
i am at my wits end.
my wife has to do everythingg for me and she is exhausted. i feel so crappy that i have to rely on her
i may be disabled but i can still take pictures :-)


  • Welcome to Spine Health.http://www.spine-health.com/forum/announcements/spine-health-announcements/welcome-message-resource

    Do you have private insurance, as well as the NHS ? If so, it might be wise to get the report, and make an appointment with a private surgeon, rather than going through the NHS. It does indeed sound as though something is going on, and it is possible that the medications allowed some of the swelling and inflammation to settle a bit, but I would get a second opinion on the imaging of the new MRI and a consult with another surgeon or two to see what they tell you.
  • The doc in ER isn't always the best person to analyse our MRIs, particularly when we are long term spine patients. I'd definitely push for a referral to a specialist. Try to get a copy of your MRI...they have a way of getting lost sometimes. I know it's not really following the rules but I'd phone your last surgeon & say you think you've damaged something 'after his surgery'. I've got an aunt who always seems to jump the NHS queue by doing that.
    Osteoarthritis & DDD.
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