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Osteomylitis again

Today I received the call from the GI Dr about my biopsies Positive for staph A. Today I undergo a complete body scan to see where else the infection has spread from the L5- S1 level. They had previously found cyst on my liver and kidneys but stated that alot of people have these but now that the infection is back they are thinking it has now invaded the organs. The lung nodules could be infection but cancer has not been ruled out as of yet. Appointment with infectious disease Dr once again after all test are back, At this point it is now considered chronic. Explains all the weight loss. If 7 weeks of IV antibiotics did not work followed by a year of oral, what is going to work? . They are also scheduling me with a cardio doctor to make sure the infection has not affected the heart. I am so sick of my chronic spine issues. When is it going to end? I have accepted my pain and all that goes with 8 spine surgeries but to be honest I have had enough. It never ends. I was told not to leave after my test that a admit to the hospital may be necessary, Nothing worse then being in the hospital. I might as well own a room as much as I have been admitted. To add to the illness there will go my job. It seems the harder I try the worse things get. Yeah I think I am having a pity party for myself right now, just need to vent. Im so sick of it all


  • I am so sorry. I don't know what else to say. I can't imagine how I would feel if I were in the same position.
    I know that this has been hugely difficult and draining. I just want you to know that we care.
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