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Going to dr. Tomorrow to talk about myelomalacia

Other symptoms have been this week tightness around neck and jaw. No problems with swallowing so far. Current meds are 20mg oxycotin 2 times a day lyrica 100 mg 3 times. Baclofen 20 mg 4 times a day. Dicloven 50 mg 2times a day ..hope he gives me something for fatigue and pain in the middle of the day. Any suggestions would be appreciated.


  • sandisandi Posts: 6,342
    edited 09/18/2014 - 5:43 AM
    Have you or are you consulting with a board certified spine surgeon regarding your condition? Surgery may be an option to remove the compression of the cord and try to prevent further damage. Medications are wonderful , but in your situation, a consult at the largest teaching hospital in your area , with a board certified neurosurgeon is your best bet.
    What kind of doctor are you seeing tomorrow? Is he a local doctor or is he a specialist?
  • 12/9/2013 I feel broke my neck. C 1. C 2. And fused down to c5 . Tomorrow a neurologist and 9/23/2013 my physiatrist . IMy spinal cord has a soft spot and they say no compression. But I feel I am still progressing and getting worse.
  • sandisandi Posts: 6,342
    edited 09/18/2014 - 7:06 AM
    When was the last imaging done of your cervical spine? The neurologist is not a spine surgeon , correct? I would suggest that you ask him to order a new MRI , since your symptoms are progressing, and possibly refer you to a large teaching hospital with a huge spinal department....those hospitals seem to draw the complex cases and some of the best surgeons in their fields.
    If I were in your shoes, that's where I would be headed.
  • Physiatrist says I have a scar on spinal cord neurologist says it's a hole.
  • He says they are saying the same thing. As for anything that can be done there is nothing. The spinal cord handles all the auto response stuff . the person handles the manual stuff, The spinal cord gets confused with the signals.
  • When was the last time you actually saw a neurosurgeon who specializes in spine injury? Or an orthopedist who specializes in spinal cord injury? Or is this neurologist you are seeing just a spinal neurosurgeon? A general neurosurgeon?
    There are major differences in those specialities and if you don't see a neurologist or orthopedist who specializes in spinal cord injury, you are short changing yourself and possible treatment options to at the least prevent further damage.
  • I was wondering if they ever do like a 2 week in hospital therapy where they monitor everything you do and also regulate your medicines. So of like stabilize you and give you mental health therapy also?
  • I don't know, but I do know that you need to see someone who knows what they are doing when it comes to your specific condition. The only way to find out is to find the correct specialist and see what they tell you regarding treatment, medications and other resources.
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