Some background: I was diagnosed with an Os odontoideum with a SCI in January 2013 and was scheduled for an emergency surgery to fuse my C1-C2 together. I also had hyper extension. Post op I was in severe pain and nothing helped- my tingling sensation I had due to my SCI. My surgeon got new scans which showed hyperexstension again and thought my tract could be giving more than it should causing me to have worsening symptoms and by this time I had lost full grip strength in my left hand. We extended the fusion up to the occipital lobe. This made the pain even worse than before to the point that I can't function and now almost a year later my body is starting to give up with the pain. We recieved new scans which showed my C2 screws where coming out because of my hyperexstension that I still have which is degenerating my C3 causing a popping. I will be having my 3 and hopefully final fusion for a while!
I was wondering if anyone had advice on what could help my fusion to succeed. I know we are all different but since my first 2 fusions were a fail I wanted to see what others could give me. My neurosurgeon is amazing also and he tried absolutely everything before recommending surgery and even met with 10 other neurosurgeons to see what the best plan would be. She really is like my guardian angel!