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daughter sick still in hospital 17 days after surgery

avinsonaavinson Posts: 4
edited 10/16/2014 - 3:07 PM in Scoliosis
My daughter is 12. She has Spina Bifida and developed scoliosis. Her curve was at 72 degrees. She had both anterior and posterior spinal fusion surgery on Sept 29. She is still in the hospital. From a PT and OT standpoint she could go home. However, she is not eating. She gags and vomits. Shes lost 14 lbs since surgery. So, she is being tube fed and is taking meds through tube as well. Has anyone experienced this? They have her on anti nausea meds and morphine and tylenol and gabapentin. And escitopralm for anxiety. She has had a number of xrays and tests. Her vp shunt is normal. I live 3 hours away from the hospital and this extended hospital stay feels like it will never end.


  • http://www.spine-health.com/forum/announcements/spine-health-announcements/welcome-spine-health-how-get-started

    She is very young, to have had to undergo such a big surgery. What have the doctors suggested is the reason for her nausea and vomiting? Have they brought in a specialist to consult with her and you , to make sure that there isn't some eating disorder problem manfesting itself?
    Did she have these type of issues prior to surgery?
  • She has not had any issues in the past. The doctors are just tube feeding her now to give her some nutrition. They plan to remove the tube after tomorrow and see how it goes. She just doesnt have an appetite and feels nautious to even think abput eating.
  • Today she ate some chicken in a bisquit crackers and puked afterwards. Her tube came up and she had to have a new one put in. This is just crazy. She hasnt eaten hardly anything since her surgery 2 1/2 weeks ago.
  • the longer this goes on, and some nausea is normal, but the acids in her stomach, even with the tube feedings are going to make getting her to eat more challenging.
    Try jellos and broths only at first......then if she can handle that, smoothies, yogurts, puddings, ensure shakes, etc.....then progress slowly would be what I would suggest......
  • I picked up some of the items and plan to try them this weekend.
  • I hope that it helps and you and your daughter are both doing much better soon.....
  • I hope she's eating soon.
  • what med do they have her on for nausea? i know for me, the standard zofran does nothing. i get horrible nausea and motion sickness from the anasthesia. 1st surgery, got that, didn't help. 2nd time around i got Emend. (its an anti-nausea med for chemortherapy patients.) it worked wonders. 3rd time, even that wasn't helping so well, so i got zofran and a scpolamine (sp?) patch as well post surgery. by the 4th time, we had it all worked out, Emend before surgery, zofran via IV every 8 hours for 3 days starting before surgery and the patch also starting before surgery. i know she's young, but maybe a different med might help more with the nausea and let her get her appetite back. there are also meds that can be used ot help increase appetite.
    Microdisectomy / hemi-laminectomy 6/2010 and revision 10/2010
    Cervical fusion C4-5 and C5-6 9/2011
    Lumbar Fusion L5-S1 6/2012
  • You might ask your daughter's doctor if the morphine could be causing her nausea. That's a side effect of the drug.

    Best wishes, and I hope she feels better soon!
  • I had surgery last month and I can say the medicine made me feel terrible and I didn't even want to eat. maybe it's hard on her because she is so young . I just turned 18 but I'm 95 lbs (or at least I was . I've been losing weight also ) May be it's just the medicine because it made me gag too.
    17 years old :) 2 rods. 22 screws . t1-s2. fusion. butttttt im happy :)
    surgery on 12/17/2014
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