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L5/S1 Compression

ctisacctisa Posts: 3
So I have had this problem for 2 years now...L5/S1 compression...feels good to sit...awful to stand still, and not really good walking...

I've tried PT, shots, CHIRO....any suggestions? to avoid surgery?

This all started in June 2013
I've seen numerous doctors who ALL only prescribe Symbalta and Lyrica (I'm not taking either)...They say my problem is not serious enough for surgery. I've had an XRAY and MRI. Slight bulging disc and the L5/S1 compression.

My doctor said, "that's just the way it is" "it will never go away" We have some great doctors here in PA! Being sarcastic

The base of my foot goes numb too....

Help!
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More information required

In order to allow other members to better respond to your thread, you need to provide us with as much detail as you have regarding your medication condition.

This included:

  • - How did this start?
    - What doctors have you seen?
    - What diagnostic tests have you had and all of their results?
    - What medications are you on?
    - What treatments have you had so far?
    - What is the action plan from your doctor?
    - etc
Ron DiLauro, Spine-Health System Moderator
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Comments

  • http://www.spine-health.com/forum/announcements/spine-health-announcements/welcome-spine-health-how-get-started


    If you aren't taking either medication, then how is it that you think that we can help?
    If you are unwilling to follow the directions of your doctors, who have examined you, and prescribed medications, but you don't follow them, then there is little that we can offer you.
  • ctisacctisa Posts: 3
    edited 10/25/2014 - 2:09 AM
    sandi said:
    http://www.spine-health.com/forum/announcements/spine-health-announcements/welcome-spine-health-how-get-started


    If you aren't taking either medication, then how is it that you think that we can help?
    If you are unwilling to follow the directions of your doctors, who have examined you, and prescribed medications, but you don't follow them, then there is little that we can offer you.
    EDITED for INAPPROPRIATE COMMENTS People experience on whether Spinal Decompression, PT, works is what I'm looking to hear about. That will help you....Not just taking a bunch of pills.



    The moderator team reserves the right to edit any post

    http://www.spine-health.com/forum/forum-rules

  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 10/24/2014 - 3:19 PM
    As you have nerve compression I'm assuming that your pain is coming from that. Cymbalta & Lyrica are very common drugs used to control your pain. I've taken both as have many members here. What's worrying you about them? Why don't you want to take them? Maybe we can help you with that.
    If the bulging (not herniated) disc is causing your problems then it is very possible that concervative treatments could help resolve this problem. Please share some more information & we can try to help. I know it can feel very desperate & frustrating dealing with this. Believe me, there are many members here who have been in the same boat. I'm sorry.
    Osteoarthritis & DDD.
  • and physical therapy...You can use the search feature at the top of the page and type in the topic you wish to search.
  • EnglishGirl said:
    As you have nerve compression I'm assuming that your pain is coming from that. Cymbalta & Lyrica are very common drugs used to control your pain. I've taken both as have many members here. What's worrying you about them? Why don't you want to take them? Maybe we can help you with that.
    If the bulging (not herniated) disc is causing your problems then it is very possible that concervative treatments could help resolve this problem. Please share some more information & we can try to help. I know it can feel very desperate & frustrating dealing with this. Believe me, there are many members here who have been in the same boat. I'm sorry.
    Yes..very frustrating to the point of tears! Can't walk for more than 10 minutes...Can't stand...feels more like Sciatica...PT hasn't worked, CHIRO hasn't worked, shots haven't worked, Accupuncture hasn't worked...pills will ease the pain and make you crazy, but won't resolve the issue.

    I'm going to see the doctor again next week...honestly, if it's like this forever, it's not worth living...no quality of life.
  • Gentle....
    I too felt desperate. I've been in writhing agony. I lost 25 pounds in three weeks with about 2-4 hours of fitful sleep each night. I had emergency surgery after pursuing a person who would take me seriously after many hours of sitting (ouch!) in a chair in various hospitals.
    I went from crawling around to finally tying on a shoe. I cried for three months during recovery as I have drop foot to contend with. Today I am better. I am stronger and I am looking forward to life. Live for each moment for now. One step at a time. Breathe.
    Take your fears to your doctors about the medicines prescribed to you. Ask.
    Have a curious heart and try new things. I was very surprised to learn how to cope with this spine journey. I like that at my age I can be suprised.
  • ctisa. I know how you feel. I really do. When you're writhing in 'that' dark place where life doesn't seem worth it, things get worse & worse & worse! When my pain isn't controlled, my mind isn't controlled & everything spirals out of controll. Ugh!! It won't be like this forever. I know that's hard to believe when you're in your position but it's true.
    Fight this. Take control back. It took me a long time to find the right blend of procedures, therapy, medications, alternative treatments. You need to find specialists you feel you can trust & work with. I've met a lot of people living with spine conditions & chronic pain. Attitude, even if you have to fake it at times really does make all the difference. There's no magic bullet. We're not going to suddenly wake one morning & realize it was a horrible dream. The people who get on best with this are the ones who find a way out of the darkness....Throw themselves into therapy & treatments with all the optimism they can muster.

    Even once I accepted that all this was true it still took me time & a lot of work to find hope. I still have times when it's exhausting & the depression creeps in again. I was like you for the longest time. This doesn't work! That doesn't work! In my experience NOTHING alone works. The only answer I've found is 'a little of this, combined with a lot of that & a sprinkle of alternative treatments to build on. I know you don't like taking the medications but I've found that I need to tolerate some just to get my pain manageable enough to do the other things, therapy etc. to the best of my ability.

    I'm sorry. I wish I had the answer for you. I wish I had the answer for ME!! All I know is I'm doing a lot better than I was at the start. I'm heading in the right direction.....
    Osteoarthritis & DDD.
  • smartens162smartens162 Manitoba, CanadaPosts: 364
    consider that our bodies can heal themselves, sometimes it just needs a little help getting its act together, which is where medication as a (hopefully) short-term solution can be helpful. If you can get the mind/body/spirit some REST, it goes a long way! There are a variety of prescriptions that a pain Dr could discuss with you to get you past the 'panic-state' ...I think that was key for me in the beginning. I was prescribed gabapentin for the nerve pain, which took a while to build up to it's potential but I'm convinced it is the thing that has helped me the most...and I've tried alot. To get the pain a little more under control, your mind is able to wrap around some of the other treatments a specialist might offer you. Be open-minded about trying some things that are out of your comfort-zone. Try a different physiotherapist (I've found one that specializes in nerve pressure - so effective, and I only have to go every 2 weeks+)...I was invited to an aquacise class and knew instantly that this was gonna be so beneficial for me! It doesn't do anything for my pain, but it gives my muscles something zero-impact to do for an hour, reducing my muscle spasms big-time. And while I can do very little out of the water, I am building muscle all over and that feels awesome when most of the time you feel like a hopeless cripple. If your disc is not ruptured, there definitely is hope for you, just don't give up!
  • A different MD.

    I have a ruptured Disc at the same area and have found actually that when I started taking the Neurontin that they prescribed, it actually worked to help to control my pain so I can function. With the neurontin I was able to Uncomfortably work a 40 hour week last week. I have a demanding job at a facility where I am responsible for Government Regulations, so I was not really in a position to take any time off.

    I am not a person to take medications. THe Neurosurgeon had me lay out all the meds I've been prescribed since this rupture and he was very surprised that the narcotics and muscle relaxants were full.

    I did not want to take the neurontin at all, but have found it really enabled me. Now..I still have a lot of trouble walking and doing regular activities. I just about passed out today int he grocery store and had to simply abandon the idea of getting groceries.

    Have you looked into an Epidural space Injection? That is my next step prior to surgery, my foot right now is entirely numb, ALL the time, but with appropriate exercises so far I've been able to maintain function.Even if you don't want to take pills, it is actually always good to try them because if they don't work, well you tried....if they DO...your quality of life is going to go way up.
    Wish you the best.

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