Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Hi all! Wish we met under better circumstances :)

ericsmomeericsmom Posts: 10
edited 10/24/2014 - 7:18 AM in New Member Introductions
Hi everyone -
I am a mom, wife, grandma ...
I'm 53 yrs old ...

Due to a carwreck, broken back and surgery when I was 18 ...
I now have Harrington Rods that are kind of scattered all over my back -
the long metal rods have slipped downward of their original placement and
the screws slid upward -
the rods look to be about 3 to 6 inches south and the screws about 2 to 3 inches up
from original placement.

I never had many back problems for 20 years after the surgery ...
then, rather out of nowhere -
it started. Pain in my low back and down my leg.

After six months - they did an xray and found the rods were "probably"
part of my pain issues (Probably? well now they realize it IS because of the rods)

I am on the Durgesic Patch 75 MCG - Percosets 10-325 (2 a day or as needed)
Parafon Forte as a muscle relaxer
diclofenac sod ec 75mg as needed ...

I'm looking forward to maybe just better understanding
my rights as a pain management patient -
ideas for other pain relief methods ...
Thank goodness...I don't have anyone else to talk about this with...
my family members are good & healthy...
but I do feel after 14 years of dealing with chronic pain - also diagnosed as
having intractable pain - I need other people like myself to talk to...




  • Yes, this forum is a great place to meet people in the same boat as we are, and share experiences and support. Reading your post, what I don't understand, according to your doctor, is pain control your only option? Is there any way to correct the current placement of rods and screws? From your description, I almost think they moved away independently? What am I missing here?

  • ericsmomeericsmom Posts: 10
    edited 10/27/2014 - 12:30 PM
    I had 3 opinions over a 2 year time period - because of the scar tissue surrounding the rods - they feel it would be quite the gamble to do surgery. Apparently getting thru the scar tissue is dangerous :( So not operable ... Yes, the rods moved on their own - I found some information on the web where there were others who experienced "broken" Harrington rods :(
    I was told (and actually have it in a letter from one surgeon) my only option was pain management - he also suggested losing weight - which I have ... 60 pounds so far :) I have to say the weight loss is nice but didn't solve the brunt of the pain.

    Thank you so much for the welcome :)
  • I don't know where you live, but it really might be a good idea to consult surgeons at the largest medical facility near you......I have found that in complex cases, the best options for surgeon's opinions come from large teaching or medical facilities at hospitals in large cities or major metro areas.
  • EMCEEMC Posts: 84
    edited 11/01/2014 - 3:31 PM
    so sorry to hear your situation...we can all relate one way or another.
    I'm sure you've tried all the unconventional ways to ease the pain. ie.massage, accupuncture, hot tub, repositioning to a comfy place, doing things in small doses so as not to make pain worse, learned your triggers that increase your pain and so many other things. I'm not real big on chiro's but some are, I have found more people do not benefit from a chiro if it's neurological involvement but everyone is different They may even try some epidural steroids if not already..
    I wanted to just chime in on your rights as a pain management patient. They are the same as if you were a patient in the hospital. Ultimately it's your body. I do not encourage you to refuse treatments or things they want to try, but to inquire about why ect. If your meds work to keep your pain in the 2-4 range and they want to change them alls I'm saying is just get a rationale.
    Another good way to find a good doc for an opinion is by word of mouth, ask friends family or friends of friends
    The only thing I would caution you about a lg teaching hospital is because they do cases that are rare or unusually difficult is you do not want them to do something like removing the hardware as a last resort to just try it, be sure it's what you want. A neurosugeon, ortho doc and spine specialist are the 3 opinions I did.
    Sometimes in large teaching hospitals you become a number however it's your job to be vigilant in your care no matter where you go. One of the best neurosurgeons I knew did not come from a lg teaching hospital
    I live within 1 hr of EDITED in NC . My surgery failed and I feel would have anyway as the nerves were crushed for so long as well as scar tissue rearing it's ugly head...
    just my experiences I hope you can stay involved with us I've found it to be an amazing support system. I had surgery in 2007 and had started coming here before I had it done and learned so much.
    I still am learning as well. I hate that other's suffer but find great relief in knowing this is a great resource. with people who get it.
    take care

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, health care facilities, web sites, or naming of health care professionals is permitted in the Spine-Health.com forums.

  • thank you - so much for replying and the good ideas & suggestions.
    I don't have long today but will definitely be back :)
    Thank you from the bottom of my heart
  • ericsmomeericsmom Posts: 10
    edited 06/21/2015 - 6:14 AM
    I reallllly wanted to thank EMC again for taking time to share his/her thoughts and experiences.

    At this point in my life, I don't think I could go thru a back surgery even if I could find someone
    to remove the rods. I've battled the chronic pain so long - I think its just done something to my psyche...
    I just don't feel as strong as I did 10 years ago.
    But one thing I have decided and even if its with my last dying breath -
    I am not going to just jump up on an operating table because a Dr said I should ---
    Nor am I going to take a medication because it is prescribed.

    I feel like I did that in the past.
    I ask questions now and I definitely say "no thank you" to medications that
    is not life sustaining.

    I sure have learned a lot as a chronic pain sufferer ...
    recently I was told that the surgery done on me when I was 18 with these rods -
    is no longer even an option - they would have done physical therapy on me ...
    Sure wish this car wreck would have happened last year instead of 30 plus years ago.
    Its just so disturbing that
    surgeries, medications are used when its not absolutely positively certain that
    it/they are safe.
    I've pretty much also decided to not take medication unless its been on the market
    for at least five years - I may even shoot for 8 years ...
    I know that sometimes the side effects of a medication or surgery
    outweigh the problems a person is having. Again if something is necessary for life over death -
    count me in. But if its not - I'm not biting ... Just my thoughts.
Sign In or Register to comment.