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Already have SCS for CRPS-also have Herniated disc, degen disc disease, SJP?

stevie_CRAsstevie_CRA Posts: 1
edited 10/25/2014 - 3:53 PM in New Member Introductions
Hello, My name is Stephanie, and I came on this site looking for information on Sacroiliac Joint Pain, and realized this might be a good place to get another one of my questions answered from a patient viewpoint. I developed Complex Regional Pain Syndrome (CRPS) after my a traumatic nerve injury to my right foot in 2007, and had quite the experience with my SCS placement(s). Due to the nature of my CRPS, and being bedridden for a long time, I developed burstitis in my right hip in 2009, due to my right leg being 1" shorter than my left due to the CRPS after effects. An x-ray of my hips showed bone spurring in the right hip as well. Before all this, I already had some serious cervical neck problems, due to being a bad MVA in 2000, and now after having paddle leads placed at the L9-L10 in 2008, have developed degenerative disc disease at this spot. Additionally, my lower back started bothering my quite a bit after another car accident in 2010, and a CT scan revealed a mild herniated disc in my mid-lumbar region. I thought the lower back pain might be due to being inactive for so long, but when I have tried to be active, the lower back pain becomes unbearable, and the pain I get in my legs is quite different from the pain I have from my CRPS. in the last year, I've had to spend a lot of time on my feet with work, and even walking around the block triggers horrible back pain, which radiates into my flank areas, and sciatic type pain radiating into my buttock and upper thighs. It has started to interfere with my ability to sleep and quality of life I had fought so hard for after my CRPS diagnosis. My other back/neck issues have also gotten more painful, and I can't take opiates anymore. I take gabapentin and Skelaxin currently, but OTCs like Tylenol are ineffective and I cannot take NSAIDs, though in the past they were also ineffective. Being a medical professional, I recently heard about Sacroiliac Joint Pain. This actually makes a lot of sense that this could be the root of the grouping of pain symptoms I have in my lower back/buttocks/hips/upper legs. One of the other things I am curious about is if there are any SCS patients out there who have had multiple SCS implants at once? I know there are newer models where they can implant multiple leads, but I cannot have my paddle leads removed, so am wondering if I can have an additional unit placed and leads inserted to control the pain in my cervical and mid-lumbar region? I have had a difficult time finding a good pain/neurology specialist who even understands CRPS, never mind management of my SCS unit, since I moved to Seattle 4.5 years ago from Chicago. Thanks for your support and assistance!
Kind Regards,
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