Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

severe hip, back, leg & feet pain 4 spinal surgeries later

mahaynes25mmahaynes25 Posts: 1
edited 11/01/2014 - 10:10 PM in Spinal Cord Stimulation
Hi there I am new to this whole site and have been reading so much and im so glad to know im not alone. I'm 34 yrs old and a single mother of 3. My daughters 12&14 & son 11. 2 of the 3 have a lot of medical issues. To top it off I have many. I was in a car accident back in 2004. Had a discectomy laminectomy w/ a segmental fusion using bone graft L5- S1. It helped 80% of my pain. Well in Sept 2010 I was in another car accident. Not my fault either time. I had severe pain neck and back. Neck was the worse and it was herniated so bad it was pressed against my spinal cord. Almost paralyzed me. If it was moved a mm. Had surgery right away Nov 2010 cervical fusion with instruments. Cage and all.. It helped big time. So comes the back pain. Many cortisone shots. Well now Oct 2011 Had to have another fusion with screws L5-S1 went through my stomach.. Still pain after that. More shots and pt since my accident I mind you.. Well now Dr says need another fusion same place L5-S1exactly 1 yr later. So he goes through my back this time adds a cage and more screws.. So now since my accident I've undergone 3 spinal surgeries exactly 1 year apart. . Grrrr. I woke up from surgery and had immediate pain in my right hip. Im told its bursitis could last up to a yr. In the last 2 yrs since last fusion I have undergone many cortisone shots, 2 nerve blocks, lesis epidural adhesions. Pain dr says spinal cord surgery nothing else I can do for you. I moved out of county. Found a new pain dr ive had a million MRI's. This guy seems like he really wants to help and not push the pain meds as I dont like taking them due to having too many friends and 2 ex husbands become addicts. Not what I need. I have 3 children to care for. Anyways I had a nerve conduction test done. Finally. Well my nerves are shot. Hurts to walk to my mail boxnbc my feet burn and the pain is just unreal. I have leg pain all the time. Back kills me. My hip is the worse. Now I've had the spinal cord trial and it helped a bit withmy feet and legs . Didnt touch my hip pain that goes to my groin, butt, upper thigh and whole hip. I never sleep. Up all night in pain. Cant stand long enough to do dishes or cook dinner. I do it bc I have no choice the kids have to eat. Im on lyrica and depression meds im on pain meds but only take when im crying and the pain is so bad I just want my hip and leg cut off.. Im scared to take the pain meds bc I dont want to get hooked. After the trial a week later my pm dr gave me a cortisone shot in my si joint. . Didnt do anything. Just hurts more.. Im in bed around the clock. I have a lot of appts between myself and my children. So after those long days I can barely move and my kids have to help me. Puts me in bed for a good two to three days. My kids shouldnt be taking care of me. Now I just had to have mri done on my cervical bc my numbness and pain are back in my hands. So before scheduling the stimulator surgery we have to see what is going on with my neck. Also has mri of my thorasic to be sure all is ok there so he can do the stimulator surgery. I complained of my hip so much to this new neurosurgeon and told him my pm dr said after the stimulator surgery he will just do another cortisone shot. . Helloooo. The shots clearly dont help.. So I insisted to have an mri of my hip.. Now waiting for neuro to go over those Mri's. But my fear is no one knows what the heck is going on with all this hip butt groin leg pain.. neuro said go to orthopedic for my hip.. well orthopedic is the one that has done all my past surgeries.. I cant drive it kills me. Anything I do hurts and leaves me in pain.. Im worried the stimulator isnt going to do the job. No one seems to know why my hip is the way it is and keeps putting ot off. I understand we have to deal with one thing at a time. But dr after dr after dr. Saying they wont touch me with a 10 foot pole or have the hardware taken out to have the stimulator and take all these meds... HELP ME. Im trying my hardest to not give up. But when is enough enough? I dont give up bc of my kids. I keep going for my kids. As they have a lot going on as well. Medically. I feel like im seeing the wrong dr. Im 100% disabled and so is my youngest son.. I want fixed so I can have my life back and take the kids camping again and fishing and go back to work or school.. But its impossible.. Does anyone know or going through all these same things and have any answers for me.. Im sorry I have went on and on but cant ask for help if I dont tell the whole story of what I have been fighting the last 4 plus years.
Anything im desperate depressed pain. I just dont know where to turn.. This is my only hope is finding this site. Even encouragement at this point.. Ive gained 50 plus lbs since my last surgery have no appetite I did quit smoking 2 mths ago. Having memory issues as of recently. I could go on with so much more that my body is doing. But ive said enough as it is..
thank you so much in advance for listening and having any suggestions or help is greatly appreciated.


  • LizLiz Posts: 7,832

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I would suggest a rehab and physical medicine specialist........the difference in them, versus just a pain management doctor is that they work with you to get you functioning at your best, and my experiences with mine have been my best source of help when it came to dealing with my spinal cord injuries...
    They can make referrals to the needed specialists, send you for the imaging or other testing that needs to be done, and are very, helpful in dealing with the other issues that crop up with repeated spinal issues.
    The other suggestion is that you go to the nearest large medical center, and find a spine specialist or two, who has experience with complex spinal issues, and see them..........see what they can recommend, or suggest as far as treatment goes.
    As far as the spinal cord stimulator goes, unless it reduced your pain levels by 50% or greater, having it implanted is pointless. Spinal cord stimulation is supposed to treat neuropathic pain, not mechanical pain, so if you aren't getting a reduction of at least 50% of the neuropathic pain, then having it implanted isn't going to improve those results.......once it scars in, you may get even less.....
    The bursitis, if it is bursitis can usually be treated by injections of steroids and lidocaine into the bursa of the hip...........it may take a few days to see a reduction in the pain, but if it is bursitis, those injections help.
    Hang in there, I know that it's difficult when dealing with children, and having issues that leave us far less able to handle those things on our own.
Sign In or Register to comment.