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Spinal pain years after scoliosis surgery

TinyNTwistedTTinyNTwisted Posts: 6
edited 11/07/2014 - 8:03 PM in Scoliosis
Hi! I was diagnosed with scoliosis at the age of 15 in March of 1995, and was told by my orthopedic surgeon that the only option was surgery. Less than a month later, I had my spine fused together and Harrington rods inserted. I recovered fine and everything checked out. About 4 years later, though, I woke up and couldn't move because I was in so much pain. For the next three years I went to several different doctors who just prescribed more pain pills and physical therapy and basically told me that I would just have to live with the pain. I finally saw a doctor that informed me that the rods could be removed without causing any other complications. This was a surprise to me because no other doctor had informed me that the rods were removable...I was under the impression that they were what was keeping me straight, not the fusion (because I was a minor when the first surgery was recommended, I suppose I didn't fully understand what was happening). I had the rods removed in September of 2002, and much of my pain was improved. I am now nearly 35 years old, and have been experiencing severe pain in my back between the shoulder blades. This happened a couple years ago, and I was told that I had developed bursitis in my spine. I was treated with cortisone and steroid injections and this worked well enough that I could go back to my normal activities. I have an appointment in a couple weeks with a scoliosis specialist (my first in over 10 years), but am seeking some pain relief now. Any suggestions for acute pain relief? Thanks!


  • LizLiz Posts: 7,832

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • over the counter topical pain and muscle rubs available in all drug stores and pharmacies, general merchandise stores, as well as some over the counter advil or motrin may offer some relief.
  • I have chronic middle leftside pain when i walk or stand for over ten minutes. I have a spinal fusion with harrington rods and the pain i get is in one small spot, i can actually pinpoint the spot with the tip of my finger It is a severe sharp stabbing pain, almost can describe it as a pointy sharp object thats trying to come out of the muscle and skin just to the left of my spine in the mid section of my back. I have to lay down to get the pain to stop. Therefore i do alot of laying around.i just had three shots in my spine a few days ago, called branch blocks. They wanted to originally do an epidural, but quickly realized that wasnt possible due to my fusion. They called this procedure a diagnostic tool and hoped it would help the pain. I am still having the pain. Its five days later and i developed a headache,neckache, and a chronic feeling of pressure in my shoulders neck and head. I also fell twice coming up my stairs and it was due to sudden left leg weakness. I am very concerned that more damage was caused and was wondering if anyone else has gone thru this. I also wanted to mention to anyone on neurontin, they should look up gabapentin lawsuits and the off label use of this medication for nerve problem and nerve pain. I was on it for neurapathy and never got relief and then found out why. It wasnt formulated for nerve pain and was falsely marketed for off label use and the company got in alot of trouble for this. I have found since i stopped taking it, that many many doctors are still prescribing it for nerve pain and obviously have no knowledge of it not working!!
  • Maybe an icepack held on the painful area for twenty minutes a day will help. I know other people with bursitis that were helped immensly by this. Good luck!! And feel better!!!
  • xmikxx1987xxmikxx1987 Posts: 2
    edited 12/23/2014 - 1:48 PM
    Hi, my partner had his rods put in last year and since his surgery he has been in so much pain and is now researching in to having them removed. Have you benefited from having the rods removed and do you have more movement now?
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