Hi. I am new here and looking for feedback about occipital neuralgia. Not sure if I posted in the correct forum but here goes...
My 20 year old son was having bizarre headaches and a neurologist said he it was caused by his occipital nerve being irritated or entrapped - occipital neuralgia.
The neurologist didn't make a huge deal out, like it was pretty common. Frankly, we felt relief that it was not something more serious. Now, after doing research, I am very concerned that we are dealing with a chronic, disabling condition for which there is no actual "cure". I am aware that internet research can lead to nothing but the worst possible scenario cases, so I am trying to keep that in perspective.
He is on amitriptyline and got the nerve blocks on Monday, which I understand are diagnostic and well as helpful for the pain. As of yesterday, he was headache free, so they appear to be working. He is a college student, so he is very on edge about "how long" the effects of the shots will last. He has had several very bad days this past month and just wants it all gone! He has not had an injury so the cause (we assume) is tight neck muscles.
Any experience with this? Is it possible that (like some other muscle/nerve issues) this is just an acute situation that will heal with Monday's injections and he can continue with a "normal" life? Most of the information online is so negative and scary.