Hi everyone, Im not new member but havent posted here in awhile and forgot and then couldnt figure out my info, so I made a new account. Anyways hopefully some people read some of this atleast and can give me some opinions.
I am in my late 20's and have already had 4 lower back surgery's. My first three surgeries were for herniated and re-herniations to do with my L5/S1 disc which caused pain down my left leg. My first injury caused bad paim down the leg and I was unable to sit. I reovered pretty much 100% after that surgery. My second injury caused pain down the leg and a new nerve pain in my left foot, since that surgery I have always had some permanent nerve damage. My third surgery was a lamenectomy and discectomy which was a success to which I recovered well enough to not need to use pain meds after about 4 weeks.
My latest injury was my first to L4/L5, I had disc material that came out and then went down the spinal canal and settled behind my L5 vertebrae, I was told by my surgeon there was a bulge at L5/S1 as well. I had pain down my leg and especially in my foot like I have never had. My entire foot was numb, and had bad nerve pain and also shooting pains in the foot and the big toe and also the lower leg. All my toes hurt. I had surgery for this and my surgeon, a good one from a top hospital who did a great job on my third surgery decided that L4/L5 had to be taken care of but that he was worried about going into L5/S1 again as there was a lot of scar tissue and he was worried about doing more harm than good to the area.
During surgery he decided to leave L5/S1 alone after taking care of L4/L5, after looking at the MRI he thought it looked like mostly scar tissue, whatever the reason he left it alone. Anyways about 7 weeks out of surgery I have had improvement. I am able to move my big toe and the pain on the top of my foot and big toe is nearly gone, just left with numbness which doesnt bother me. The shooting pains have also gotten much better. The problem is I am having tremendous pain in my small toes and the outside of my foot, the L5/S1 symptoms. It feels like someone is twisting a knife into my pinky and second toe, or sometimes like a file is being scraped against them. I also have burning type nerve pain on the outside of my foot,but most of the unbearable pain is on those toes or on the foot right below where the toes start.
Sometimes I will go 4 or 5 days without noticing much pain and some days, like right now which started on Thursday, Im am in miserable and unbearable pain all day long. I have called the surgeon and he has said that it could take the nerve a long tim to heal, I think he believes the herniation at L4/L5 was causing the L5/S1 pain because the disc material went down far into the spainal canal. Im not so sure though, I think the bulge at L5/S1 could be causing this.
I am on lyrica daily and oxycodone IR, when I called him last time I was in serious pain like this he said to take 10mg OxyIR every 3 hours until the pain feels better,other wise just take it as instructed or not at all if I didnt need it. I also take valium for spasms, but only really need that to help me sleep at night. Its very hard to fall asleep with those nerves even when they are just tingling a bit. Ive actually strongly considered cutting off one of toes it bothered me so much, I dont even feel anything when I stick a knife into my pinky toe.
Today I am in pain and I said screw it and took 20mg OxyIR at one time, and finally some relief, I dont notice the pain as much, its manageable at least. Im wondering if hydrocodone would work better for me, I took that when I broke a leg and I remember it working, but I layed in bed for a couple monthes and it wasnt nerve damage. I took Lorcet 10's every 4 hours for about 4 months.
Im worried this pain may be permanent and I dont know how I can live like this, I wish my surgeon went into L5/S1 and took that bulge out. Ive never been in this bad of shape this far out of surgery. I will have to find something to do if this is permanent. I may have to get referred to pain management, not sure what they would do though. I cant concentrate on even watchign tv when my foot is killing me like this, it really sucks.