I have been in lumbar pain for 28 years and have waited 11 ½ months for an L2 / L3 fusion with hardware. It was cancelled 2 weeks ago due to my surgeon needing surgery on his wrist that he broke about 4 months ago. Another surgeon, Mr xxxx has been asked to do it, due to my other surgeon being off for several weeks. I am seeing him tomorrow to discuss my op, so hopefully it will go well. I have been asked whether I will be prepared to take a cancellation over Christmas, I've said yes, because I'm desperate now to get it done. I'm in so much pain 24/7.
In January 1987 I had a judo accident where a 10 ½ stone girl fell onto my neck, leaving me with permanent neck and back damage. I wake up with an achy, pressure headache, it never ever goes away and at its worst, my head pounds for days on end. Over the years, my lumbar area has got worse, especially my sacroiliac joints. For the last 20+ years, I have had 10 - 14 steroid injections every 3 - 4 months, 4 in my lumbar and the rest in my neck. Then, my anaesthetist retired, causing my pain to quadruple. I did get passed on to another pain specialist, who is helping a little.
About 2 years ago, I picked up a spine infection, causing my L2 / L3 disc to collapse and modic changes type 2 to happen as well as scoliosis. My leg pain has increased massively with numbness when walking or sitting. After several MRI scans and hospital visits, I was offered a spine fusion. Apart from my steroid injections, this was the only treatment ever to be offered to me.
Now, I'm waiting and hoping for my surgery to be over Christmas. I too, have read many blogs and they are worrying. To be honest, if I get some improvement, I will be reasonably happy. I'm on 30 painkillers a day, plus 5 lots of Oramorph, so if I can reduce this amount, then great. If I don't, I still had to try…I couldn't turn down the op, no way.
Is there anyone who has had long term pain, like myself?
I would like a buddy if anyone is interested.