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I had a spinal fusion 7 weeks ago (although it feels longer) and have had worsening hypersensitivity since then. It started at the drain site and has spread to the point that it's down half my back and all the way over to the left and right side. My PT has me trying desensitization by rubbing the area and constantly touching it but it's not getting better. Anyone else have this. What has helped and how long did it take to go away? I am having a hard time brushing my hair and my clothing constantly bothers it. I need some help!


  • For my arms and legs I use a very light baby's oil and let it dry in cool air. When I sleep I can only have a sheet on.the baby oil works great on the feet
  • dilaurodilauro ConnecticutPosts: 9,862
    Do not depend on a response from therapist.
    They probably see the condition and attempt to treat it, but understanding the origin of the condition and why is something else.

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • and that commonly flares up post op, but I would strongly suggest that you contact your surgeon , for his recommendations. Medications can be used to manage the nerve pain but at the same time, you want to make sure that there isn't anything else going on.
  • I have contacted my surgeon and she was the one who suggested I have the PT do some desensitization exercises. She is contacting a pain doctor to see what other treatments there are and I am on Lyrica which I started almost 2 weeks ago. My surgeon said that desensitization activities which my therapist gave would be the best treatment for it but so far no luck. And it's been over 3 weeks.
  • dilaurodilauro ConnecticutPosts: 9,862
    edited 12/19/2014 - 9:17 AM
    but what is the cause? That is another problem that needs to be identified.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • 1028761102876 Posts: 248
    edited 12/19/2014 - 12:03 PM
    My surgeon isn't conpletely sure. I had surgery 7 weeks ago and that's when it started. At first they thought it was possibly an infection but my blood test came back normal, they don't believe it's nerves since it has been slowly spreading. My surgeon tried contacting a pain doctor to see what other things it could be but she is pretty sure that it isn't nerves or muscles or anything serious.
  • Hi. I know you say you've contacted your surgeon & he's talked to your PM but has either specialist actually examined you or has it just been telephone calls? I always think its better to be safe than sorry. I'd like you to be seen by your surgeon & pain management doctor so (as Ron says) your problem can be properly diagnosed & treated.
    Surgery & recovery can be really frightening. I'm sorry you're going through this. Even if it just puts your mind at rest & gets you some relief I'd make those appointments. Best of luck ;-)
    Osteoarthritis & DDD.
  • I saw her about 3 weeks ago. I saw my primary physician first who told me to go to my neurosurgeon who I got into the next day. She wants to wait til my 3 month mark at the beginning of February. Anyone know of any tests I can suggest? I see my PM doc on the 2nd and hopefully we can get this solved. My surgeon has asked other neurosurgeons (through phone calls) and they have never heard of such a random case. I Always seem to be one of those "rare breeds". She has contacted my pain management doctor who saw me but mainly just to adjust medications and she said that the course of action should be working but I had only done the desensitization techniques for about a week at that point so there shouldn't have been a shift. Anyone know of possibilities that could be causing this also? I like to go into things with my eyes opened instead of being blindsided.
  • 102 I. Have the same problem they keep bouncing me sound. I've been dealing with this since February.
    It's getting worse and worse. I can't pin anyone down to give me an honest response.
    Everyone on this forum says keep listening to your Drs. Or change . I've done that. I've been to emergency and they have kept me for a few days. No doctors I've seen want to contradict othEr Drs. Keep trying and let us know how you are doing. We'll pray for you for help.
  • Thanks mike,
    I really trust my surgeon and she has spoken to many other doctors. Nobody has heard of someone having such bad hypersensitivity as I do. That being said I have had 3 surgeries in less than a 2 year span and my surgeon has never had another patient need so many surgeries. All were obviously needed due to some hardware issues and she has always been one who stays on the cautious side even if that means a boatload of tests. She has even sent me to the ER sometimes due to my severe pain to see if anytbing else is happening.. The most concerning part to me is that they don't know what's going on. She said the best thing to do is try my PTs desensitization exercises and time. I just got an email from her saying that if the pain doctor doesn't know what's going on then inFebruary she will send me in for a boatload of tests. She said that she won't abandon me and we will get to the bottom of it so that helps me feel secure. My surgeon has been great through all this so I don't feel a need to look for others-with my surgeries she has contacted 30 other neurosurgeons to make sure that the procedure she does is the right one. Thanks for your prayers mike! I will do the same for you!
  • 102876. It sounds like you have a great surgeon in your corner. Sometimes it takes a frustratingly long time to get to the bottom of these problems. I've had some very strange nerve symptoms in the past. In my case they went away as my pain became better controlled. I've never had your issue so I can't shed any light on it. The most important thing, in my experience, is having specialists that you trust, who are knowledgable & dedicated to your care. Sounds like your surgeon is doing everything she can to gain knowledge of this very unusual situation. Like everything with the spine it can take a frustratingly long time to find the right treatments. I learnt a long time ago that there's no such thing as a magic potion that instantly resolves any spine problems.

    Mike. Have you researched your condition? Are you now seeing doctors who have a lot of experience in dealing with it? When you have a very specific diagnosis it's important to find knowledgable specialists who know how other patients in the same boat have responded to different treatments. Have you discussed a surgical solution or is medicinal management all that's available?
    Osteoarthritis & DDD.
  • So I finally got some answers. My pain doctor said that she beliees I have severe arthritis in my cervical spine which is irritating my medial nerves which in turn is bothering all superficial nerves. She believes this is the cause of my hypersensitivity and prescribed me an ketamine amitriptalyline ointment which has to be made at a compounding pharmacy. We are also uping my dose of Lyrica to the maximum daily dose of 300 mg. the ointment only lasts about 2 hours and I am only allowed to place it on 2times a day so I may need some adjustments with it but so far something is at least working!
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 01/07/2015 - 7:07 PM
    I really like my Ketamine cream. The amount I could use it slowly increased over time. I've had a few different mixes & increases in certain ingredients. I REALLY like compounded meds. I think it's a great idea. We're all different so being able to be that flexible with meds is a great idea I think.
    I haven't had any side-effects or problems with mine & it's never stained or damaged any of my clothing. I had a lot of side-effects with meds like Lyrica & Gabapentin so mine includes nerve meds. It's also got muscle relaxants & some different numbing products. I have very arthritic fingers. It's great for them as well as my back.
    I hope you get on with it as well as me. It works best when used very consistently for me.
    Osteoarthritis & DDD.
  • coming along. I have been having some flare ups this winter.
    I am hoping it's been due to the cold weather.
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