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Practically disabled on right side 6 months after microdisectomy to l4/5

In July I went out of work for what was to be a minor surgery out possible 6/8 weeks. Here I am 7 months later pain on left side no longer there... So what's the problem well 2 weeks into the recovery I started a very restricted PT . But noticed my right side started to bother me. So I had a post op MRI W /wo contrast now this would be my 4th MRI in September ... I had a pelvic, lower back, thoracic , 2 of lower back. Now I started to mention to my spine surgeon my right back and hip was starting to be painful so that's why he did the September MRI to rule out re herniation . It showed scar tissue near the root but he said wouldn't cause right sided pain and maybe there is minimal fragment radiologist says possible re herniation but again would affect right side....so he does a left sided epidural spinal block does nothing for pain but leaves me in bed with severe side effects and a spinal headache well since then and the PT my condition had worsened to before surgery... I did not have a fusion . Btw I am out of work and have now lost my position and pain just increases. So we order another MRI now do a different type of injection in the right side, no relief and at least side effects are tolerable ... So now dr is baffled ... I did Aqua therspy, I did land therapy any activity makes the pain worse I have been diagnosed with microdisectomy , sciatica, pelvic dysfunction, sacrilliac joint dysfunction , radiculopathy on right side, and my sacrum seems to be like an inflamed source of pain I can't sit long, walk long, bend , my husband lifts me up in the am from bed because sometimes I feel weighted like paralyzed and lately my arms are going numb like awakens me as if a pitch fork went thru the joints can't even do a full body stretch without pain barely sleeping ... So I was referred to colleague and at first he was very intrigued ordered spect scan and possible si injection followed up with him today totally different appt I wasn't on the schedule until the 8th , no it was the 5th, never reviewed films with myself and my husband said everything looks great but u have uptake near T 7 so I want you to have a cervical scan ? gave me a quick look over briefly talked I paid for a follow up visit and now suggests a rheumatologist who BTW can't see me until March . I'm losing my mind . Is anyone been through this ? I've lost a lot my quality of life, my job, which is income and I might add med benefits, just want the answer still no straight disgnosis I don't sit around all day I try to stay active but pain gets worse and no relief with PT eIther. Thoughts ? Anyone?
This can't be happening


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