My name is Mike from Oceanside California. I am a 4 times wounded former marine. Had 6 spinal fusions, a mastectomy of my left breast ( yes I am a MALE...) and ALL of this in just a 5 month period with 2 additional back surgeries to close a massive Seroma that developed after they found and removed a massive tumor larger than a grapefruit that had wrapped itself around the base of my spine, paralyzing my left side and unbearable pain. I have been on Fentanyl 50 MCD patches for about 8 months now and have not driven a car for over a year since I woke up paralyzed and the nightmare above began. I will NOT drive impaired and even the Fentanyl is doing very little to control my pain, yet still leaves me too high to function. I saw a post you made years ago about YOU having had a pump and that you were happy with it.
I of course seem to only find & read the horror stories about pain pumps. My new pain management people are PUSHING me for a SCS trial but are willing to do the pump too if I insist. Either way I have to sign a contract tomorrow that literally surrenders my entire LIFE over to them. NO meds of any kind can come from anyone other than them etc. I refuse the SCS, NO way. I want the pump but am literally terrified when I read about blood patches or some such, all I hear is you will want to die when it fails. Do you have ANYTHING good you could share with me? Still happy you got the pump? I am out of time and need to go one way or the other. I will be 66 next month and scared to death. I can't survive yet another failed surgery or the pain it brings me. I just can't. It seems everyone INCLUDING me wants me off drugs, yet I read of people being on these, even HUGE dosages of Fentanyl for 10 plus years with NO issues???? I have to ask, is that REALLY feasible? Is that an option I should even consider asking for as opposed to invasive pumps and SCS electrodes?
If I really must, I am willing to surrender my alertness, quit driving forever since I refuse to endanger other with MY being impaired. I will give up being at the top of my game and drug free over ANY further surgeries with all their risks and side effects IF it is an honest and viable option. I just don't thing any pain management office will offer that or even consider it since there is no BIG money in it for them with that approach...I need what is safest, most effective. I refused all these surgeries for over 35 years and lived with tons of great days, days where I won world surfing competitions, raced my motorcycles to Hell & back...I HAD a great life. Turning 66 and having just surrendered to these surgeons 9 months ago I have seen my life disappear 100%....I don't want anymore surgeons or "lets try THIS" crap. I was told with my last surgery of 4 fusions in a single operation using the new Mazor Robot, that he expected a good 50% reduction in my pain that was then and still IS, soft tissue pain! But I let him, and never walked again without a walker and just a few steps a day. So, what would YOU do? Tomorrow Jan 22 I have to sign my life over to this pain management HIGH PRESSURE Clinic that makes me get any & ALL medications for anything, period from them. I have already refused their demands of seeing a headshrinker as standard operating procedure on a forever weekly basis. I am NOT rich and in fact poor NOW thank you and the co-pays are killing us. So all I see is yet another yet newer "system" to suck money from me and my great insurance. What would YOU do? Really?
Thanks for ANY info,
Fusion With Hardware C5/C6
Fusion With Hardware L3 THROUGH S1