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Bone Pain and Fatigue

Orange_PeelOOrange_Peel Posts: 4
edited 01/31/2015 - 10:27 PM in Lower Back Pain
This is a long post. I am new to the forum, so please forgive me if my conventions aren't quite community standard as yet.

I am having a lot of pain in my spine, and although I can pinpoint a general area (low part of my mid back), it seems a very general complaint to bring to my doctor, because I do have some bone pain in other parts of my body, in my arm oddly enough, and in my right leg, though that pales in comparison to my spine. It may be pain from lack of movement or something, or even illness, I have no clue what any of this is.

I have numbness in my fee/legs that almost feels like pins and needles, and a general sick/wrong feeling in my body. I am having sensory issues in my feet and legs that go beyond what I normally experience. This pain in my spine is not helped by movement or rest, though I feel very weak generally. The pain is not muscle pain or sciatica insofar as I can tell, though what I know could fill an index card. Because of the pain and weakness, I am very fatigued and unsteady. The pain is bad enough that it woke me up in the middle of the night and my heart was racing.

Two weeks or so ago, I had some kind of syncope and collapse that is as yet unexplained. A CT scan of my head was clean. The blood work showed some elevated levels, in the WBC and the CRP and ESR. I was tested again later and these values were closer to normal ranges insofar as far as I know, though my doctor is out and cannot read the reports until Monday. I spoke to the nurse on the phone and she told me what little I do know. I tell you this because I don't know if this pain/fatigue and the episode last week are connected.

I am not sure how to manage these symptoms until I can speak to my doctor. I am accustomed to body aches and pain as I have cerebral palsy but this is beyond the scope of my experience, even considering my surgical history. I am so tired and I just feel terrible. I am hesitant to address this strongly because I've never experienced this before and have no point of reference for discussing this kind of pain or these symptoms. I also am reluctant to address this because I have a new doctor, which I know is silly, but it has crossed my mind that I feel uneasy. I think reaching out may help me to get over myself.

The reason I am posting here is that I would like talk to others about their experiences so as to get a handle on what I'm going through right now. It's quite possible the syncope was a virus (which would make sense with the blood levels) and that I don't belong here. Maybe this pain will just go away, but I feel really isolated and hope that reaching out will be a positive thing for me. It's just I can't keep going to my friends for support, as it's not fair to them. Still, something doesn't feel right and I wanted to reach out in the hopes that doing so would ease my mind with factual information or your own experiences.

So my questions:
1) What are some ways I can manage this pain at home or cope with my symptoms that don't include pain pills? Do you find that heat or ice helps you with your conditions?
2) Should I be concerned? What would you do were you in my shoes?
3) Has anyone had similar experiences that might shed some light on what I'm experiencing?

Thank you for reading my post. I will reply to any questions or comments if you post.


  • LizLiz Posts: 7,832
    Welcome to Spine-Health

    Use that above hyperlink to help you get started with Spine-Health and navigate through the system.

    If there are any questions, you can always post them here, send Liz or myself a private message or contact Ron rdilauro@veritashealth.com

    There is nobody on the forum medically qualified to answer some of your questions.

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Liz,
    Thanks for the warm welcome. To be clear, I'm totally not looking for medical advice, just discussion, so I hope I haven't phrased anything too terribly. People should go to doctors for medical advice and evaluations, but doctors aren't really there for peer-support, you know? :)

    I had no idea what to say in introducing myself but I want to be clear I only seek to hear from others about their experiences and to talk to people. I posted here simply because I wanted to start a discussion, maybe to feel less alone and find people who can relate. I'm thankful that you replied, as I'm still learning how to work these forums, so thanks again for the link.
  • LizLiz Posts: 7,832
    It sounds like your issues are very complex so members may find it hard to respond, maybe once you have seen your doctor you have some answers and that will help us know in what direction to go and how we can help. I want to reassure you that you have posted on the forum correctly I just wanted to cover ourselves so you were aware we aren't professionals.
    In the meantime this link maybe of some help.

    The Blend

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Liz,
    Complexity should be my middle name or something. That link is helpful in thinking about ways to psychologically address physical pain. Lately I've been using the brick wall visualization. You imagine putting all of your pain in boxes, and you put the boxes in a space, and you build up a brick wall in your mind that totally blocks off that space. Sometimes just putting a brick in the wall can be enough for a time. Now, I know that might not work for everybody, but visualization has been helping me.
    Thanks again for reassuring me that I'm posting correctly. I'll be sure to update this week when I am able to have some answers. I hope that sharing all of this might help someone who does stumble across my thread in the future. There's nothing like a manufactured silver lining.
    Hope you are enjoying your Sunday.
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