My name is Nikki and I was diagnosed with fibromyalgia about 1 1/2 years ago, after experiencing chronic fatigue and different types of pain for 3 or 4 months prior. Almost every woman on my mothers side suffers from it as well, so I guess it's not suprising. It has completely changed my life and I still haven't found a good way to deal with it, if there is one. And I know I'll get asked about how sure I am of my diagnosis, and I am very sure. I've been diagnosed by 3 doctors and have gone through comprehensive exama and tests and blah blah blah. I just feel defeated and I can't seem to get anyone in my life to understand. Oh, and I forgot about the meds. I take 400 MG of neurontin 3x/day, 100 MG of Ultram 3x/day, 800 MG of ibuprofen if needed, 4 MG of Zanaflex 2x/day (which I usually only tale 1 of per day, at night), 5 MG of Ambient 1x/day. I was taking Savella for 2 months, which was really helping, but I'm having issues with my insurance covering it, so I've been off it for a few weeks now. I take my meds exactly as prescribed, and if I don't need it, I don't take it.
Literally all I do is lay in bed. I read, I watch tv, and wish I had someone to talk to. I don't know what I'm supposed to do with this illness. What is someone supposed to do? It's not like I'm 40 or 50 with a good, well-lived life behind me. I don't get to be a young adult. Im 21 with a genius iq, half of a college degree, no job and what really feels like nothing to look forward to. I feel like my life has been snatched right out from under me. I don't know how to get better. I feel like an imposter in my own body. I can't do hardly anything that I used to. How do I deal with that? And it's not even just the unpredictable, varied pain. It's the headaches, the IBS, the fatigue, the confusion, the depression. It's endless really. I want so badly to make the best out of my life, I just don't have the slightest idea as to where to begin.
Does anyone have any advice? And please, don't be hateful.