I am new to this site but reading through some of the topics I am hoping someone can help me. I was diagnosed with Spina Bifida Occulta when I was 19 after suffering bad back pain while I was pregnant with my son. The doctor said me being pregnant put too much strain on my back, but that was six years ago and the pain is still there. He said with my condition I should not be in pain, and that I am too young to be on pain medication. I saw a neurologist and they put me on Neurontin to help my nerves but they also said I should not be in pain. They said since I was young, there was no point in having surgery and risk paralyzing me. but they said it Is degenerative and that by the time I am 30 I will probably need to have surgery. I have to wait until I cannot control my body for someone to help me. I went in for pain and they told me to lose weight. I am now 100 pounds (I am only 4'11, so I'm naturally small) and the pain is still there. Now it is progressing to my legs and my feet get ice cold. My middle back has also started hurting and I don't know Why. I have only had one CT scan done when I was first diagnosed ( I have a pacemaker so I cannot do MRIs) and no one has really seemed interested in helping me since then. What do I do and How do I convince people and doctors that I am in pain? Why should I have to wait until I'm paralyzed to get help? Everything is getting worse and no one wants to help. My family believed me but doctors do not. How do I fight that? Thank you for reading and if anyone has any advice Please let me know.