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Pain that's getting worse

TashiaTTashia Posts: 2
edited 02/27/2015 - 5:19 AM in Lower Back Pain
Hi Everyone,
I am new to this site but reading through some of the topics I am hoping someone can help me. I was diagnosed with Spina Bifida Occulta when I was 19 after suffering bad back pain while I was pregnant with my son. The doctor said me being pregnant put too much strain on my back, but that was six years ago and the pain is still there. He said with my condition I should not be in pain, and that I am too young to be on pain medication. I saw a neurologist and they put me on Neurontin to help my nerves but they also said I should not be in pain. They said since I was young, there was no point in having surgery and risk paralyzing me. but they said it Is degenerative and that by the time I am 30 I will probably need to have surgery. I have to wait until I cannot control my body for someone to help me. I went in for pain and they told me to lose weight. I am now 100 pounds (I am only 4'11, so I'm naturally small) and the pain is still there. Now it is progressing to my legs and my feet get ice cold. My middle back has also started hurting and I don't know Why. I have only had one CT scan done when I was first diagnosed ( I have a pacemaker so I cannot do MRIs) and no one has really seemed interested in helping me since then. What do I do and How do I convince people and doctors that I am in pain? Why should I have to wait until I'm paralyzed to get help? Everything is getting worse and no one wants to help. My family believed me but doctors do not. How do I fight that? Thank you for reading and if anyone has any advice Please let me know.
Tashia Gorham


  • LizLiz Posts: 7,832
    Welcome to Spine-Health

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • im about the same age as you, and in the same situation. my injuries are not healing, and new parts of me hurt eeryday. noone seems to be able to answer why though.
  • itsautonomicitsautonomic LouisianaPosts: 1,806
    Many doctors have said that to people before they recieved an actual diagnosis, "you shouldnt be in pain" does not mean you are not in pain the doctors just cannot find the reason at this time. If a doctor says just because your scans are ok and they cant find issue that you are not in pain or cant be in pain then that doctor should be fired as your doctor. Keep looking and seek second opinion and dont stop looking. If you have been in progressing pain 6 years and the doctors think surgury could be answer when older then something needs to be found and treated.
    Pain does not discriminate but at times doctors make comments like you are to young to take pain meds and it makes you think that it does. That is not right, if they dont think you need them that is one thing, but to be to young if there is a need for pain management means nothing. I to was told that in my mid 20's.
    What kind of doctor are you seeing?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Hi, I am also new to this site. Had my L5 S1 surgery 3 weeks ago. I am trying not to take pain meds. I don't know what the process is for this. I am finding that I still have to take them at least twice a day to walk around. My follow up is not until my 6th week post op. Now, I am having a new sympton. Hip pain after being up for too long. I feel as if I should be make more progress.
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