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Hello, I am new here and was hoping to find someone who can relate

ZoliZZoli Posts: 2
edited 02/28/2015 - 10:42 PM in New Member Introductions

This is my first time posting. My name is Nick. I suffer from 3 bulging discs in my neck, one with mild stenosis in the spinal canal and a herniated disc in my lower back that has nerve damage at the nerve root. Due to the issues I have developed really poor posture I have developed scoliosis and now have a 2+ inch curve in my spine in the middle of my back.

I decided to do some searching for a support group because I feel horrible always laying it on my wife and it seems like the only people who understand how bad the pain can be are people who suffer from similar issues.

I originally hurt my lower back in 2005 right after Hurricane Katrina destroyed my job. I took a labor job rather than sit on my butt and I've been regretting that decision since November '05. I'm not sure what happened to my neck if it's just an effect of poor posture or if it's related to my lower back injury.

I am not sure how much detail I should go into on my introduction but I wanted to say hello and hopefully find a kind soul to point me in a general direction so I don't break any of the rules that I sort of sped-read through.

Thanks for reading.


  • LizLiz Posts: 7,832
    Welcome to Spine-Health

    Use that above hyperlink to help you get started with Spine-Health and navigate through the system.

    If there are any questions, you can always post them here, send Liz or myself a private message or contact Ron rdilauro@veritashealth.com

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • And informative.
    Check out the link above in Liz's post.
    Have you been to a spine surgeon and what have they said?
    Are you able to do some physio to help your posture?
    Don't be hard on yourself or your wife. Get through it together. I know it's hard. I've been down for almost a year. Through unidentified pain to more pain to worse to surgery to recovery and learning how to walk again and live with my lovely little family who counts on me and needs me and figuring out how to shine within my limits and try to live and not have it about me and my pain.

    There's stages you go through. Just try and go through together.
  • Great advice, spiney Malone. Welcome nick
    2015: Thoracic protrusions C7-T1, T3-4, T6-8
    Dec'13: 360FusionL4-S1 w/bone graft
    2013: 3x2-level disc injections: 12mo surgery postponement
    Dec'12: DiscogramL4-S1
    Sep/Oct'12: Bi-lateral Rhizo AblationsL4- S1
  • Thanks for the welcome.

    To be honest, I cannot even remember what doctors I saw originally back in '05 but I ended up getting 2 steroid injections I believe from the pain specialist they sent me to. The company where I hurt myself fought my treatment every step on the way and when my old job rebuilt I said screw it and went back to work and just lived with the pain so I could get back to work. I never sued or went after the other company to keep paying for treatment because I thought I was still semi young and I would heal not really understanding my injury.

    I dealt with the chronic pain which at times wasn't terrible until I re-injured it in January of '13. Then the new job I had taken had awesome insurance that paid 100% of everything with a major drawback: everything had to be approved through the doctor my work had hid for their on-site clinic. I had fallen about 8' from a ladder while removing tree limbs our hurricane insurance required to be away from the house. The work doctor couldn't read the digital x-rays and said I sprained my wrist (actually had two fractures and a torn ligament) and he said nothing was wrong with my lower back. Then I started getting twitching in both lower legs (without new pain) so he started worrying I had ALS and sent me to a neurologist. The neuro had new MRI's, x-rays and nerve conduction study done and saw I had aggravated the herniated disc, the scoliosis and the stenosis in my neck (my lower back took two weeks after the twitching stsrted after being re-injured to start hurting horribly).

    I went to 3 months of physical therapy, 6 months a of chiropractor and was finally starting to get some relief on my neck when the company went under and I found myself looking for work. Companies were not hiring any full-time employees who got benefits do I took what work I could and didn't have the money for any treatments. My neuro kept seeing me to make sure nothing was getting worse and kept me on muscle relaxers and pain medications so I could function and work. It was like I went from chronic pain to living in acute major pain daily but I was getting by. The one neurosurgeon my work doctor sent my MRI's to replied that he couldn't do anything for me (without even having me come in to consult with him).

    Now, I am trying to start my family business from scratch and find myself able to do less and less. Some days my legs are weak and others I am in so much pain that I can't sleep at night then end up being in some sort of hazed half awake half sleep crap through the day. My wife just got a promotion which gives us both access to the best insurance we have had in forever and I just started back with my old chiropractor but the days following seeing her (only been twice so far) it's like she has crippled me. I don't know what is happening in my neck but when it used to lock up (once every 2-3 weeks) it was the most excruciating pain for a few hours (like a knife into the the soft spot then into my head on left side below where skull meets neck) followed by a headache until I was able to sleep for a few hours till the last 6 months it goes out almost daily and sometimes non-stop for a week at a time. It gets so bad I'll go sit in the garage to get away from my wife and cats and she'll come out there to see me and I'll just sit there and cry in pain because I cannot escape it.

    My wife hasn't finished her training for her promotion yet so her increased pay doesn't kick in until next week and my business is suffering because some days because I can't turn my head or my lower back is hurting so I can't drive and be out walking neighborhoods trying to drum up business like I did last year when things were going well financially (real estate). My chiropractor said she has helped tons of people get on disability and I have enough proof and enough issues that she thinks I could get it but I don't want to. I want to get better and I want to be working. At first I was terrified of the idea of surgery and did everything I could (pt, chiro, steroid injections) to try and avoid it (my best friends mom in high school (back in the 80's, im sure things have come a long way...?) died on the operating table during back surgery and that is wrapped up tightly in my terrified brain but I think I am at the end of my rope. My wife has been a saint since day 1 of this mess but I can't keep putting her, or me, through this without getting some sort of improvement or at least find a way to stop everything from getting worse. Now I am suffering from severe depression on top of the injuries and know that probably only makes things worse. Viscious cycle.

    So I came here knowing I don't have it as bad as many and knowing there were probably thousands like me who had been down this road before and could offer their advice and experience on how to be a better advocate for myself with the doctors. Again, thanks for reading and for any help/advice/experience you can give me on what steps have helped youselves & others you know or have read about.
  • Just my opinion, but especially with a neck injury, you should be avoiding the chiro. Please see a neurosurgeon or another qualified physician and he/she will probably tell you the same
    2015: Thoracic protrusions C7-T1, T3-4, T6-8
    Dec'13: 360FusionL4-S1 w/bone graft
    2013: 3x2-level disc injections: 12mo surgery postponement
    Dec'12: DiscogramL4-S1
    Sep/Oct'12: Bi-lateral Rhizo AblationsL4- S1
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