Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Neurosurgeon does not know what MRI means

JohnnyToledoJJohnnyToledo Posts: 36
edited 03/13/2015 - 3:54 PM in Back Surgery and Neck Surgery

I have unexplainable all over burning and tingling in my elbow joints, hands, arms, wrists, back, legs, neck, ribs, pretty much everywhere. My original MRI mentioned myelomalacia, but my most recent MRI says the myelomalacia can no longer be found and mentions cord deformity. I recently saw a neurosurgeon at the mayo clinic in Florida, and he says that my MRI is not consistent with my symptoms and there is nothing he can do. I asked him what the MRI report means, and he told me he doesn't know. Please, if you have knowledge of what this means, let me know. The cervical MRI came up totally fine and the lumbar has 2 herniations, but is fine other than that. The thoracic is what has me worried:

MR Thoracic Spine No IVCon

Reason for Exam: Prior Thoracic MR findings of possible myelomalacia with worsening symptoms. Evaluate for interval change
Ordering Diagnosis: Neuropathic pain

HISTORY: 28-year old male with possible myelomalacia on prior MRI

EXAM: MR THORACIC SPINE NO IVCON. Noncontrast MRI of the thoracic spine was performed at 3.0 Tesla.

PRIOR STUDY: 8/8/2014

FINDINGS: There is anatomic alignment in the thoracic region of the spine. There is no spondylolisthesis. Vertebral body heights are preserved. There is mild disc dessiccation in the lower thoracic levels.

At T5-6 there is a central disc protrusion with effacement of anterior thecal space and deformity of the cord. There is no abnormal cord signal. The previously described altered signal is not seen to advantage.

At T6-7 there is a central disc protrusion with mild canal stenosis. There is no foraminal narrowing.

At T9-10, there is a right paracentral disc protrusion, with effacement of the thecal soace and deformity of the cord. There is no foraminal narrowing.

There is no foraminal narrowing throughout the thoracic spine. The soft tissues are unremarkable.

IMPRESSION: Central disc protrusion at T5-6 with mild canal stenosis. The previously described altered cord signal is not seen to advantage. Disc protrusions with mild canal stenosis at T6-7 and T9-10 are also unchanged from the prior MRI.

John Calderaio


  • itsautonomicitsautonomic LouisianaPosts: 1,806
    Any cord deforming coud be worse upon being upright. From a neurosurgeon perspective it may not be an answer to your pain, but remeber that is from what he specialises in and he is probably saying T56 should not have effect on arms the way you are having it. I suggest you see a neuromuscular specialist, if you had some damage at one time to cord such as myleomalicia if thats what it was just because it no longer shows up does not mean physiologically you are fine. There can be lasting effect throughout body and they are the best in my opinion to dig down into what kind of effects. I to saw highly respected neurosurgeons that did not find the issue.
    It seems like the T5-6 was not on last MRI but other protrusions were, what level did they suspect the myleomalica. Was it the same level? That would be a red flag to me if this was my MRI. Did you have MRI at same place prior?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • scwilssscwils Posts: 2
    edited 03/15/2015 - 10:27 AM
    WHOA! As I recall, when my cervical MRI showed "severe deformity of the cord" the Neuro Surgeon told me either I have surgery or become a quadrapalegic. I don't know what T5-6 cord deformity involves but I'm certain it's not a good thing to have a deformed spinal cord.

    I feel for you. I had a wonderful surgeon. But, you must remember, Surgeons only do surgery. I was referred to the best physio DO in the area. Lots of PT, 6 months worth; however, my Last visit to her because of the severe pain I'm experiencing apparently interfered with her leaving early Dec 23 to go spend time with her grandchildren for Christmas. Her comment to me was, "It's always the near misses that complain the most." Who knows what it is with these docs. Maybe they have to give too much of themselves and just get tired of listening to the complaints. I know the hospitals are demanding more from them and the new technology (Electronic Medical Records, etc) is stressful for the older docs. They want to do medicine, not complete forms electronically.

    My primary physician was shocked when I went to her because as she put it, "this is not you." I have been severely anxious and in so much pain. I go to gentle yoga classes just so I can continue to move my shoulders and arms. Frankly, it's just cheaper than going to PT with $600 worth of deductibles and all the copays. My PCP ordered two MRIs for me when I asked. One Lumbar and one cervical. Low and behold, since the last Lumbar MRI 19 months ago I have herniated L3,4 and 5 with L4 nerve root impingement. I'm feeling it. I am seeking out another doctor to help me.

    Do as much research as you can. Start a journal showing pain levels, areas and meds. Unfortunately, today's medicine is in our own hands. No one thought to look at my neck after complaining of bowel incontinence. I made them take the MRI. Do your own research (Don't scare yourself too badly) and get your facts together to present to the doctor.

    I don't think the surgeons can do much about the T spine unless your life is in danger. I am still researching that for myself as I just looked at that T Spine MRI from 19 months ago. Since the lumbar herniated, I'm concerned the T spine has gotten worse, too. Wish I had been thinking properly to ask for another T Spine MRI at the same time. Oh, well. Next week.

    I've been informed that you must continue to move your body. It hurts like I've been run over lately and I want answers, too. Hang in there. Others are hanging with you, too!

    And I will take my own advice. I have to fill in my journal for the last week.
    I know God won't give me more than I can handle. I just wish He didn't trust me so much. (Mother Theresa)
  • dilaurodilauro ConnecticutPosts: 9,842
    it is a forum violation to ask or give medical advice
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
Sign In or Register to comment.