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Help.. in ER. Possible CES?

DeetasticDDeetastic Posts: 1
edited 03/17/2015 - 9:54 AM in Lower Back Pain
I'm in the ER & I need to know what to do next. I am going to be 100% honest (you'll see what I mean in a second lol) because I need to know what to do next.

I don't think I have much time to explain but a little background information .. I've had Lupus since I was 12 w/ renal Vasculitis. Stage 5 & 2 failure along with 5 or 6 different Chemotherapies both IV & pill. I have been coming to this hospital since I was 12 & this doctor I have doesn't like me because she thinks I need attention (which is fair because not too many people understand Lupus) this is why I am going to be honest. Because 1. Why would I go through all this trouble if I was lying lol 2. My mom is here & we are both in for 3pm (it's almost 1) I wouldn't make her lose out on money.

OK so it all started in Oct of 2013. I went on a cruise & some how I ended up with a herniated disk on a nerve w/ sciatica. Since then I've always had lower back pain.

3 weeks ago I noticed my legs were twitching alot & I didn't have control over them. My mom said I was driving her nuts but I had also upped my Ritalin dose so I thought maybe I was just anxious.

Last week I noticed my legs falling asleep really easily when I wasn't even sitting Indian style or anything. 5 days ago I told mom cause I couldn't get up & we laughed about it. I told her it's cause I lost weight & had no cushion.

3 days ago I told my mom I was having trouble peeing. I explained I have to push really hard & if I stop pushing I stop peeing even if I'm not done.

Yesterday I got a severe stomach ache & I don't get my period anymore (stopped in 2013) but if I had to describe it, it was similar to severe cramps. I went to the bathroom cause I thought maybe I had to poop & I felt like I could but I didn't go. (I got gastric sleeve surgery in Sept so I only eat like 4oz, I don't poop everyday. Maybe once a week. So I went 3 days ago which means I wouldn't of had to poop yesterday)

This morning around 530 am I was walking into work & I had told mom my stomach was hurting again (she's w/ me all the time hahah)

I had peed before I left for work at 5:20ish. Got to work around 5:35 & went to pee again cause I was shaking my legs like I was going to pee. I had to push again but this time only a drop came out. I've felt like I had to pee all day since that.

I got home from work & my back was KILLING me. I was going to take a shower & go nap before I had to go back to work & I noticed the lower back pain I've had since 2013 was severe & I couldn't bend over or walk without feeling like a board was on my back.. I felt like I had to poop again & knew I didn't so I went to lay down. I was going to try to get into fetal position cause I thought it would help if I stretched out & I brought my legs up a little & they went completely numb & cramped up & I couldn't move them. I sat up & they fell down & feeling came back. So I went on Google to look up stretches for herniated disks & that's when I saw "when should I go to the ER for back pain"

that's when I found the word "Cauda Equnia Syndrome"

I clicked on the link & saw that I had all of the symptoms & it's crazy cause sometimes you have like 5/10.. i had them ALL. So I called my Dr & she told me to go to the ER.

Now she is telling me I am most likely dehydrated & I don't need an MRI but I should get one & I know she thinks I am thinking I have all these symptoms because I saw it online but I promise to God it's not that & in my mind I just don't feel right.

As I type this my toes are numb & my feet are twitching like crazy & whenever I move or turn my lower back KILLS & it feels like I am getting shocked.

She said to my mom "I'd only be worried if you couldn't hold your pee" which is pissing me more off cause I was reading posts on here & it sounded exactly like what I was going through.

Do you think maybe it isn't CES & that maybe I am just crazy ? Or what should I do? I'm scared :( please help me..


  • LizLiz Posts: 7,832
    edited 03/17/2015 - 9:54 AM
    Welcome to Spine-Health

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    If there are any questions, you can always post them here, send Liz or myself a private message or contact Ron rdilauro@veritashealth.com

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I don't know if you've been seen yet and obviously I'm not a Doctor. I've passed numerous kidney stones and have to say what you're describing fits those symptoms to a T. Or even possibly a kidney infection. The twitching and numbness may be related to your other conditions but the whole urinary and cramping issues sounds kidney related. Could be wrong though and Good Luck. Hopefully you will be seen soon.
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