Firstly I feel bad for not posting for so long.Basically I didn't really have anything positive to add & didn't want to bring anyone down.However I desperately need support from people who have suffered/are suffering from chronic back pain.Where to begin (AGAIN)-discectomy 2 levels about 3 yrs ago,11 mths ago =scoliosis curve correction,laminectomies,decompression & extensive multi level fusion (lumber & sacral) with corresponding rods/hardware etc.
Now 11 mths on I am no where near returning to work (if ever? and being a breadwinner makes this beyond stressful).I am in severe pain 24/7---it is around 5.30 am & after spending hrs in bed,in pain-I have given up on sleep tnite?tday--kiddies will be up at 7.30am & need me to get them ready for school.This has been happening a lot & sleeping tablets are not an option. The fusion was a success from a stability point of view but if anything I am in worse pain than before the op & that really was my objective of the surgery-altho I do know stability was the surgeons goal & he was hopeful pain reduction would follow.
I really cannot bear the thought of being in this much pain for the rest of my life (early 40's).I really don't know where to turn.Hubby not a bit sympathetic but then again I am hard to live with having been in constant back pain for 10yrs or more.I'm still having to take opoids, which I hate but need just to be able to do stuff for the kiddies etc,anti inflammatories ,paracetamol,lignacaine patches & any other gel/cream ,herbal or otherwise that may have been recommended.i've done the swimming,PT endless walking etc.
I had trigger inj's a month ago to no avail & last week an epidural & facet joint procedures.Whilst these can take up to 2weeks to reach full effect there's no sign of any pain reduction.I have had umpteem of these in the past plus rhizotomies etc. I still had a bit of hope as surgeon had said that maybe something else surgical could be done but on a recent review of my latest scan he doesn't think surgery benefits will outweigh any risks.He did say he wouldn't put me through another surgery unless he could 'guarantee' I would gain appropriate pain reduction from it. just a few days ago he broke this news.He was honest & said i'll probably be looking at pain management from here on in.......This has shattered me.I've been unable to stop weeping & fully assimilate the info.I have been 'pain managing' for over 10 yrs now & the fusion was really my last hope.
I don't mean to sound all 'poor me'......I fully appreciate there are many many members going through the same or worse...If anyone has any advise at all I would be so so grateful.sorry to be so negative it's just the facts I suppose I now need to face (AGAIN).thanking you all.