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New guy

clwinbecclwinbe Posts: 30
edited 03/25/2015 - 11:17 AM in New Member Introductions
Long term chronic pain with a very horked l4/l5. We have tried injections, multiple surgeries . This far, I have a St Jude spinal chord stim, a morphine pump running at a very high volume. Lately, I have severe neuropathy down the right quad, I have to catheter on and off (nerve related). I am out of options and there is no doc I can turn too now.

I have been house bound for the most part of the last four years. I have lost contact with every friend, every family member other than those living in my home. They all say , " we never see you any more. You should drop by some time". I have strongly considered suicide but feel a bit better now, but it's really depressing situation to live with.

I see heavy arthritis building, and multiple other discs starting to go down the same path. I won't go through another fusion.

This all started with a dirt bike accident. Every year, the back would go out and a chiropractic adjustment or muscle relaxers and ice. Eventually, pain increased and lost feeling down left leg. I started deep injections four or so a year. Pain increased so we saw Two neurological cutters. Both observed the disk was drastically cutting off the nerve channel. We opted for a partial disc removal done through a scope. Worked ok until the weakened disk wall blew out. I lay in bed fighting Aetna to approve fusion for three months. My company Ceo and board of directors forced them to pay up. Not much improved with fusion. Phys therapy made it worse. The doc said he had to cut six inches deep on both sides of the spine. He also used the largest screws he could get. All that tissue disruption and scar tissue.....

I had a St Jude neuro stimulator installed. It helped for a year before it actually caused pain. Next was a intrathecal morphine pump. This was a very large gain in pain control, but the nerve continued to degrade. One day, not able to urinate. Even after a TURP. Know one knows why. I have started suffering severe burning/shooting pain down my right thigh. Shower water hurts. This hurts more than the hump in my lower back.

I started hot pool therapy last year. This was a killer option. I still have those days but I can walk better now.

As for a future plan of action, there is none. My doc advised we have used everything known to man. I never leave home, and no one comes over. I am alone 90 of the time. All this and I am not even 50 yet. I have no hope for change. I can only hope for some nasty health issue to kill me.

I am so glad to be here.

Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
    - What Conservative treatments have you had? Which ones?
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 03/25/15 12:48 est


  • No one answered so I guess we talk to myself
  • Jill55JJill55 Posts: 101
    edited 04/12/2015 - 8:30 PM
    I am so sorry nobody replied. Don't take it personally (though I did) that nobody replied. Same happened to me and others.
    I don't know what to say about your situation it must be horrendous. I hope someone can point you in a new direction. In the meantime sending hugs.
  • I don't. I have tried to insure every new member is greeted just so they feel someone is watching. This is very had stuff we deal with. The people need to feel that someone cares.

    Thanks again for your thoughts.
  • clwinbe , please get some counseling, ASAP. You need to talk with someone, face to face. Obviously I have no idea what your going through, but please don't give up. There has to be someone out there somewhere that has some answers and can help you. All of us on this forum have spine problems, so we're all suffering some kind of pain. Are you religious, can you talk to a priest, or a minister? I know there's someone out there that can help you. Please, do not give up. I hope you find someone real soon my friend. I'm going to check back in here to see how your doing. Sending positive vibes your way. :) Ken
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