I'm new to this forum. But I would appreciate advice or help from others struggling with their quantify of life. Ever the optimist I applied to grad school hoping my left lumbar and hip pain would improved. I have been accepted across the country. I'll have to do the school thing living on my own. I will also have to work part time to pay. I'm determine to go. This is what makes me happy. But I'm scared to fail because of my pain and weakness.
Summary of my health
Dx with cancer in my spine at age 2. Laminectomies at L4-5. left leg and foot weakness.
2011 labral tear in left hip. Misdx and accelerated DDD at L4-5.
Now I have radiculpathy with shooting pain down leg and out bottom of foot. My left hip swells after sitting too long. I have lumbar spine instability and weakness.
I can't sit , stand or walk longer than 15-30 minutes without the pain flaring up. Only the radiofrequency ablation helps with pain but I have to get it done every 4 months. I'm constantly tired. I found a new pilates PT that is helping to strengthen my glutes. It only works because I'm doing the exercise on my back. It takes the pressure off my spine.
My question is to any students: how do you do school and live with chronic pain?
I'm sure I'll need a lumbar fusion down the road. But I want to enjoy life now. Any advice is appreciated.
Aged 30; Neuroblastoma age 2 w/ laminectomies at L4 & L5
Current dx: Radioculopathy, Stenosis, DDD severe L5 & moderate L4, Chronic left lumbar & hip pain
Radiofrequency abalation every 4 months and pilates PT for pain relief+ too many pain meds