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spinal STIM removal

smooth-movessmooth-move Posts: 6
edited 04/07/2015 - 8:42 PM in Spinal Cord Stimulation
I've had my spinal STIM for almost 4 years and I've been so disappointed in it. Tell me someone, why the trial worked but the implant was never a success for my pain issues? I have chosen to have it removed and my surgery date is next week. I chose to have it removed cause of bad experiences. for one, the battery pack is gouging me and it's painful to lay on my side to sleep. I have had muscle spasms where the leads are located since I got it, and I was very upset when the St Jude rep tried to program it again and again because of my complaints of the STIM not helping me. He turned it up so high I was shaking. That was so spiteful of him! . So, I'm looking for others peoples experiences of living with this STIM and actually having it removed. I kind of need to know what I'm up against.... Is it going to cause other problems to have it removed? Is it going to be as painful as it was when it was surgically implanted? Does anyone feel this STIM was worth it?


  • LizLiz Posts: 7,832
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    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Hi smooth-move, I had a Spinal STIM implant in 2004 and a removal in 2013. It helped at first, but seemed to run out of juice in about a year or so. So to me, it wasn't worth the implant in the 1st place. And it was no big deal having it removed in 2013. I agree, the battery pack gave me a fit, too!
  • miss emilymmiss emily Posts: 1
    edited 05/16/2015 - 2:20 PM
    Hi Smooth Move, I feel your pain. I had a spinal cord stimulator implanted in December 2014, went back in the next day because I was in so much pain. The battery was sticking way out on my right side. I was told it was probably surgical pain. January 2015 I had the battery moved to my butt. I was OK a little uncomfortable, but the pain at the battery site just keeps getting worse it is now May 2015 and the surgeon wants to see me. I am thinking I just want him to remove it. The pain at the battery site is as bad as my original pain it was to help with. The Stimulator is not helping as much with my original pain now either. I go about every 2 weeks to have my stimulator adjusted trying to get relief to no avail. I am wondering if you did get your stimulator removed and how you are doing?
  • I had a SCS but had it removed because all it did was tingle over top of my pain. It was painless to have it removed. I now have a Pain Pump and am now pain free in my feet and legs.
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