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Coping Tips

PackergreenPPackergreen Posts: 1
edited 04/15/2015 - 11:07 PM in Matters of the Heart
Hi all,

Just discovered this community today as I've been struggling pretty badly the last couple days and hope that someone here can provide some advice and/or encouragement. So, about me: I'm currently 29 and was diagnosed at 25 with L5-S1 Degenerative Disc Disease, Spinal & Lateral Stenosis, congenitally shortened pedicles, and ankylosing spondylitis. After the diagnosis, I received 2 corticosteroid epidural injections and PT. The shots worked great for about 6 months and then the PT started to do more damage than good, and right about that time I lost my insurance. Jump forward a couple years and I go to my PCP and get a referral to a pain clinic. Pain clinic won't prescribe opiates due to MMJ use for OCD. Tried Gabapentin and Ibuprofen without much help, insurance denied corticosteroid injections coded both as treatment and as exploratory, had an EMG test scheduled before insurance dropped again. I have 'pinching' pain that feels like my actual coccyx is being pinched; burning, shooting pains down my inner thighs; numbness on outside of calve and left foot; occasional shots of pain up along the side of my spine. Now, not to try and make this a pity party, but just to add some perspective, I have sever OCD that I was diagnosed with at 11 and have suffered with ever since. I spent 7 years trying and withdrawing from every kind of prescription med, herbal remedy, nutritional supplements. known to man, including morphine and antipsychotics. I eventually discovered that MMJ is what works the best for me at the moment, but it took everything i had to get through that process, and it almost killed me. I am just so tired of the fight. I am so tired of getting my hopes up that my suffering might be relieved only to have it dashed again. I feel like I've spent so much time looking for a cure that has proved fruitless and I;m starting to wish I had just used that time doing anything else. I'm just tired of fighting and the thought of going through that whole process again with my pain is almost panic inducing to me and I've been in tears the last couple days. The pain has gotten considerably worse in the last couple years and numerous doctors have remake that I am QUIET young to be having all these issues. I'm terrified that I won;t be able to run and play with my kids, or even be pleasant if I'm going to be in constant pain, how do you keep on going when every single moment you have that gnawing at you in the back of your mind? I would really love for someone to let me know how you deal with it. Do you have these same thoughts? Any advice would be so appreciated.
Thank you, everyone, for your support. Be well


  • LizLiz Posts: 7,832
    edited 04/15/2015 - 11:07 PM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
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    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 5,476
    .....life with constant pain is most difficult and I'm not sure I'd believe the severity if I wasn't living it myself.

    On this site is "the blend"..an article written about coping. You might find it beneficial.
    And I know how difficult it is to stay pleasant with people.

    When my kids were younger, I too was aware of what my face might be showing....since pain can look like anger.
    When I would notice one of them looking at me, I would flash a smile.
    I don't know if it worked, but was best I could think of.

    Hopefully, you have support system...and people who can help you with the kids and or the mundane daily tasks that keep that pain screaming.

    Do take care!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Hey there. Most people in here could relate to what you are talking about in your post. We all know the pain you are experiencing even of some of us didn't have to endure it for as long as you did and still do.
    My heart goes out to people like yourself as I was the same before I had my surgery. I couldn't think straight because of the pain and was loosing hope.
    But here I am after more than a year of suffering and things are looking up. Never give up on hoping things will get better. Think of the nice things you will be doing when all this hell will stop. Take care of you and feel free to ask anything you want. I'm sure you will always get some good advice or even some nice words from members.
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