I will try to make this as concise as possible, since my symptoms started 5 years ago, in August 2010. It seemed simple enough, I couldn't get my back to adjust, so I sought out acupuncture. That being unsuccessful, the doctor decided to schedule a MRI. Well, it snowballed from there. Fast forward (through all the tests and injections) to September 2011 when I had a L5-S1 fusion. I got about three months relief before symptoms gradually began returning. It started in my left leg. I was still having a lot of nerve pain, which made my surgeon concerned that my sciatic was still pinched. Apparently during surgery they found that my sciatic nerve was severely pinched because of my herniated disc. From there we did an MRI to make sure the nerve had adequate space, which it did. So he decided we were going to do some injections, Cortizone of course, the standard go-to. None of the injections worked, so we decided to start investigating my SI joint. And that's where everything snowballed. I have had more CT scans, MRIs, radiographs, Cortizone injections, nerve blocks, physical therapy (for 3 years), and medications too numerous to count (including neurontin & lyrica - which is new for me and is helping my left leg hypersensitivity) . I have either been treated by, consulted with, or given an opinion by at least eight doctors. That includes an internationally known hospital, and our University Ortho specialty hospital, where my current specialist practices . He diagnosed me with Sacroiliac dysfunction, Trochanteric bursitis, Facet arthropathy, bulging discs from L1 through L4, among other things. My physical therapist diagnosed me with complex regional pain syndrome (CRPS or RSD) as well. I had been doing my best to manage. I had good days, but when I pushed it, I would pay for it for the next 3 days. I had to learn to pace myself. Does this sound familiar to anyone? However, things have taken a significant turn for the worse. Most of April, it has been very difficult to drive (hurts to put pressure on my feet to push peddles, which causes back spasms, in addition to the intense pain in my back from the bumps of traveling), lifting anything, rolling over, stretching, reaching for anything, and moving my elevated feet while lying on the couch without causing severe back pain is near impossible. All the pain is directed at my spine from my sacrum to approximately L1. Just a few days ago, I moved my foot (when lying on the couch) and I had a jolt go from my foot to my head. My ortho doctor at the University wants to fuse my left SI joint (with iFuse), but insurance has turned me down. Now I'm dealing with new pain! I'm scheduled for an upright MRI next wk, never had one before, but hoping it will give some answers. I'm in worse condition than before my fusion surgery! I believe my back surgeon ignored my SI joint all along. I need to note that my leg pain has been confined to the left about 95% of the time. So there you have it. Hard to cover 5 years in one post, but you get the gist. Anyone have a similar experience? Thoughts? Thank you!
L5-S1 fusion 2011, compression fracture T-12 (2012), torn labrums, SI joint dysfunction, bi-lateral trochanteric bursitis, facet arthropathy, spondylosis in discs L1 through L4, mild desiccated, and protrusion. Duration since symptoms began, 5 years.