Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

SI joint pain suddenly became excruciating low back pain

BoxerMomBBoxerMom Posts: 3
edited 04/19/2015 - 9:14 PM in Lower Back Pain
I will try to make this as concise as possible, since my symptoms started 5 years ago, in August 2010. It seemed simple enough, I couldn't get my back to adjust, so I sought out acupuncture. That being unsuccessful, the doctor decided to schedule a MRI. Well, it snowballed from there. Fast forward (through all the tests and injections) to September 2011 when I had a L5-S1 fusion. I got about three months relief before symptoms gradually began returning. It started in my left leg. I was still having a lot of nerve pain, which made my surgeon concerned that my sciatic was still pinched. Apparently during surgery they found that my sciatic nerve was severely pinched because of my herniated disc. From there we did an MRI to make sure the nerve had adequate space, which it did. So he decided we were going to do some injections, Cortizone of course, the standard go-to. None of the injections worked, so we decided to start investigating my SI joint. And that's where everything snowballed. I have had more CT scans, MRIs, radiographs, Cortizone injections, nerve blocks, physical therapy (for 3 years), and medications too numerous to count (including neurontin & lyrica - which is new for me and is helping my left leg hypersensitivity) . I have either been treated by, consulted with, or given an opinion by at least eight doctors. That includes an internationally known hospital, and our University Ortho specialty hospital, where my current specialist practices . He diagnosed me with Sacroiliac dysfunction, Trochanteric bursitis, Facet arthropathy, bulging discs from L1 through L4, among other things. My physical therapist diagnosed me with complex regional pain syndrome (CRPS or RSD) as well. I had been doing my best to manage. I had good days, but when I pushed it, I would pay for it for the next 3 days. I had to learn to pace myself. Does this sound familiar to anyone? However, things have taken a significant turn for the worse. Most of April, it has been very difficult to drive (hurts to put pressure on my feet to push peddles, which causes back spasms, in addition to the intense pain in my back from the bumps of traveling), lifting anything, rolling over, stretching, reaching for anything, and moving my elevated feet while lying on the couch without causing severe back pain is near impossible. All the pain is directed at my spine from my sacrum to approximately L1. Just a few days ago, I moved my foot (when lying on the couch) and I had a jolt go from my foot to my head. My ortho doctor at the University wants to fuse my left SI joint (with iFuse), but insurance has turned me down. Now I'm dealing with new pain! I'm scheduled for an upright MRI next wk, never had one before, but hoping it will give some answers. I'm in worse condition than before my fusion surgery! I believe my back surgeon ignored my SI joint all along. I need to note that my leg pain has been confined to the left about 95% of the time. So there you have it. Hard to cover 5 years in one post, but you get the gist. Anyone have a similar experience? Thoughts? Thank you!

L5-S1 fusion 2011, compression fracture T-12 (2012), torn labrums, SI joint dysfunction, bi-lateral trochanteric bursitis, facet arthropathy, spondylosis in discs L1 through L4, mild desiccated, and protrusion. Duration since symptoms began, 5 years.


  • LizLiz Posts: 7,832
    edited 04/19/2015 - 9:14 PM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

    Spine-Health Main Menu Tabs

    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Medical Articles
    Pain Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - All new members must read our FAQ in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on Spine-Health Forum FAQ

    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

    Here are some links that all new members need to review to create effective threads and more

    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    You can also find Spine-Health on these Social Networks

    Facebook www.facebook.com/spinehealth
    Pinterest http://pinterest.com/spinehealth/boards/
    Twitter https://twitter.com/SpineHealth

    If you have any questions or need assistance, you can use the private message facility to[u] contact any one of the Spine-Health Moderators



    Doug Hell

    Also working with us very closely is Allison Walsh from the Spine-Health company


    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Yep, one year after fusion my si went....And severely! Curled up like a baby crying. The injections did wonders.

    Then my L4 popped an annular tear, and it has cascaded upward ever since. I finally got tire of it all and went on the Butrans patch, which keeps me going with minimal pain. I tried going off it, and I was in crisis once a month.

    I haven't heard good things about the si fusion.
  • Hope3HHope3 Posts: 751
    edited 04/22/2015 - 12:39 PM
    If you have done a post to this and I have responded forgive me
    I don't think right with this kind of pain and my memory is suffering
    due to pain meds and injections plus no sleep.
    Truly to read your post makes me filled with fear for what a person
    can go through and to end up where you are today makes me feel
    like a big whiner. I have had back pain for a lot of years but in the past
    18 months this new pain has made me wish I could go back.
    To not be able to sleep, walk much, sit, bath and just try to tolerate the
    pain day in and day out is just more that a person should have to deal with.
    I have just recently had an injection into the SI joint helped some did some yard work and
    all hell broke loose. They did an MRI and pelvic x-rays nothing but I convinced
    the Doctor to test by poking in my tender area SI and I thought I was going to
    scream. They just don't want to go in that direction for some reason and I
    am not sure if they believe that is what it is. Now I am going to a new TP
    and another shot praying to God it will help this pain.
    Anyway I have the same symptoms on the left side and really sorry you have
    been through all you have and I pray you get some help.
    Please post as to how you are and what the MRI reveals.
    Best of all
  • Hello, This is my first post, I came across this researching because of the intense pain I have. I cant sleep, when sitting and I get up the first step is extreamly painful. It goes down into my right leg, horrible pain on the outside of my calf, big toe and pad under toe is numb, the lower back if I turn to far it gives me the worst nerve pain ever. I cant even put on my undies right or socks. I cant bring my leg up to cross ontop of other leg to do these things. I'm taking Tramadal 50 mg like candy and Naproxen 500 twice a day ansd tylenol inbetween. I tried Lyrica but had horrible side effects. The pain is keeping me from doing everything. Emotionally I live with depression and now the pain is making my depression worse.
    In 2010 I had L3 4 Fusion, The pain seemed to subside for awhile but then I was regretting having the surgery because it came right back. For a long time it would act up when for example sweeping, shoveling, raking, etc. About a month ago I had horrible tailbone pain, I couldnt stand upright because of the pain. Coughing and sneezing are impossible. Then last week it moved above my tailbone and to the right side. It has gotten worse everyday. Today it hurts to even breath. I'm waiting for an approval for a S1 nerve root block. I use ice a lot and got through bio-freeze like crazy. Can anyone give me any advice????
    Please help if you can.
  • Your symptoms sound exactly like mine and I am really sorry that you are going through this hell too. I never dreamed pain could be like this and of course there is worse. But like you it is all I do is try to get through one day at a time hoping to find a some relief.
    How did the Doctor pinpoint the SI joint as being the problem? Did they go through all the standard stuff like physical tests, injections etc. to make that determination?
    Why are they not giving you something to relieve the pain? I take pain meds but now am trying some other meds that are supposed to help the nerve pain.
    It is depressing and very frustrating to not be able to do things my PT has me rest and a few exercises and that is it. I am going crazy but very determined to get to the bottom of it.
    I wish I could help you so much but don't have the answers about all that helps me at the moment is the meds, ice and tons of Biofreeze too.
    I pray they authorize your nerve block and that gives you relief.
    Sometimes it helps to chat with someone who has the same issues so PM me any time you want.
    Please keep us posted too of how you are doing.
    Take care Sherri
  • I can only say that I am still learning about my si joint. When mine goes out the soas muscel go into a tight contraction that yanks my spinal curve strait. That has been seen on my xray. Then I can feel at the same time my performis muscel go into fits which in turn puts pressure on the sciatic nerve. From there I get pain to the bottom of my foot. I feel the performis pain deep beside the si joints and where it connects to the leg bone at the top . This can all be so bad that my but feels nailed to the bed with a railroad spike. If it was my right side it would stop me from driving. The so as muscel spasam is pain all the way to the bottom of the ribs in the back and sometimes I even feel pain under my shoulder blades.

    I will feel like I am laced in a bone corset. My therepist said that my hips are twisted in opposite directions because of the joint and spasam. It also causes me to have a nasty bit of pain going upstairs with difficulty making the leg actually lift. Hills are nasty painful, too.

    What has helped me most is home tens which I wear most of the day. I am scared of the si joint operation. I feel at 300 pounds I would be asking for more trouble. I have also done physical therepist to strengthen the muscels. I was misdiagnosed and in pain so long that not walking much caused them to waist resulting in even more spasam.

    Perhaps you can try the tens. I don't get along well with pain meds because of other problems so for me it was covered by medicare.
    rosa harris
Sign In or Register to comment.