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Any ideas?

akellymaakellym Posts: 3
edited 04/21/2015 - 4:48 AM in Chronic Pain

In October 2013 i had left shoulder decompression and cup tear fixed. Other than the pain from that i have never had any shoulder, upper spine or neck pain. One month after the shoulder surgery i started experiencing bi lateral shoulder pain. The crowns of the shoulders felt like they were burning. This Continued even after i healed from the surgery. ThIs pain continued to progress in intensity to the point of having to take morphine twice a day. The pain was manageable with meds. My orthopedic doctor referred me to a low back and neck doctor. It was determined that RF would help the shoulder pain. This was after months of physical therapy, epidurals and head shrinking at a pain management clinic. The RF helped the bi lateral shoulder pain. I had 3 very long painful months of recovery. Unfortunately before i had finished recovering from that i developed severe pain in my upper neck that is exasperated by ANY physical activity at all. My doctor and i decided that more RF of the new pain area was the best alternative. Its been almost 2 months now and the pain is worse. Im currently taking morphine twice daily, Norco 3 a day and lyrica twice a day. The pain is horrendous even with meds.

My question is Why and how is this happening. I cant find anyone that can explain this to me... how does a simple shoulder surgery end up with me in constant pain. Every time they fix one thing it leads to something else more painful than the last. i have gone from a very active person to unable to do anything.

Any suggestions or thoughts as to what's going on?

Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
    - What Conservative treatments have you had? Which ones?
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :
The cervical area and thoracic area do have direct relationships with shoulders.

--- Ron DiLauro, Spine-Health System Moderator : 04/21/15 10:48 est



  • Maybe I should change the title :) Maybe get someone to actually read it:(
  • SavageSavage United StatesPosts: 5,476
    As Ron mentioned, above, the cervical area and thoracic area do have direct relationship with shoulders.

    Myself, I can not answer the why or how to what is going on with your symptoms.

    Is doctor taking the time to explain you situation clearly? I have found at times it helps to have someone with me when I meet with doctor.....as with so much pain I can't always absorb all being explained. ....nice to have another set of ears and another person to help ask questions.

    Keep us posted on how you are doing. Good luck

    Spine-Health Moderator
    Please read my medical history at: Medical History

  • hi, im new to this site and am trying to help myself and others. I left a lengthy message in the chronic pain forum about whats goin on w ith me. akellym I share your pain, guess we need to put out more info so that others can identify and help

  • hope4better said:
    hi, im new to this site and am trying to help myself and others. I left a lengthy message in the chronic pain forum about whats goin on w ith me. akellym I share your pain, guess we need to put out more info so that others can identify and help
    Yes I plan to gather the details and post them.

    I was hoping just to find someone that might be able to say they knew what what happening to me... I'm sure that I can't be the first person that has experienced something like what I'm going through.

    I see a neurologist on the 27th, maybe that will lead to some answers. My VA doctor thinks it could be related to my TBI or possibly the chem exposure... which tells me he's just guessing.
  • lets see if I can shorten up 12 years of pain :) . hurt my back in 03 at work. between the herniation, stenosis and increased pain. I ended up having surgery ; fusion and laminectomy. I seemed to get better but a year ago developed more pain in my legs. blocks, acupuncture, pt land and aquatic and several other things were tried. let me back up a bit, during these years my primary ordered an mri for my continual headaches. was told by ortho surgeon, that ii would have to have surgery one day. Stay with me now, lol, fast forward these last 2 months. tried all these types of non narcotic pain relievers, but they laughed at my pAIN. I have never had this kind of unbearable pain, I can barely walk, sleep, sit etc. pain management didn't think an mri was warranted. my hero primary dr did though. results= run do not walk to ortho surgeon. very close to sp-cauda equin ? but first, I had to have my neck operated on. the stenosis is so bad it wowed the drs. ok, now he says, ii will not operate on you till you quit smoking! then we wait a few weeks and operate. its not the quitting im terrified of its the time span! tomorrow, I see a neurol. sugeon for a second opinion if you will. boy I need help and would so appreciate any feedback anyone could give.
  • I would be happy to share any or all of the advice I get, I to, have compression.
  • I would be happy to share any or all of the advice I get, I to, have compression.
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