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extreme back pain

Kylie BoydKKylie Boyd Posts: 2
edited 05/29/2015 - 4:49 AM in Chronic Pain
I am 17 years old. I have had severe lower back pain for around four or five years. I went to the doctor and had some x-rays done at my doctor and a MRI done at Children's Hospital. They found that I have Spina Bifida Occulta at the L5 vertebrae. They also told me that I have slight scoliosis. They sent me to physical therapy where I found out I have back spasms. They didn't help, so I stopped going. My mom says it's just the back spasms making it hurt. But I don't see where they can make it hurt all the time this bad. And plus, something has to be causing the back spasms. It doesnt really feel like my muscles are what is hurting. More like my nerves, or my spine. The pain is only getting worse with time. It is completely ruining my life. I cannot do anything. I can't even walk through the store. Nothing helps. No position or movement. No medicine or cream or pain relievers. Nothing helps. I generally feel the pain all over my back because it is so bad, it feels like it is my spine. Sometimes it works it's way down to my buttocks and my knees start to hurt. I hope my mom will take me back to the doctor to see a specialist and to make them redo my tests since it's been a while. She said she might take me to a chiropractor, but been saying that for like a year and hasn't done it yet. They told me my Spina Bifida shouldn't cause pain, and my scoliosis isn't bad enough. Something has to cause the spasms though, but what? This kind of pain is not just caused by nothing. Something for more has to be wrong that they are missing. Anyone that has any suggestions of what it could be?? I cannot do anything anymore. I feel like a lazy, no life, teenager. But no one seems to understand the pain I am in. Sometimes it feels like I need to be bent in half backwards. Or that someone with long fingernails is tearing into my spine trying to rip it apart. It will get so bad that I just want to go to the er. It will feel like my back is trying to cave in.


  • your mother giving you medications that belong to someone else is not. Back pain should not cause a fever. Fevers are a sign of infection. There are many things that could be causing low back pain, including a bladder/kidney infection.
    A physical and re-evaluation of your spine is a good starting point.
    Heat may also not be the best option ,try using ice, wrapped in a towel 15 minutes on, then off for half an hour.

  • SavageSavage United StatesPosts: 5,476
    Pain levels in the middle of the night.....such severe pain.....you need ER.
    Pain is telling you something is wrong and needs to be investigated by specialist.

    Now since ER did not happen, you need to notify your doctor asap and let doctor decide to see you or not, but to at least be aware of severe pain and doc's need to continue investigating source or cause.

    I agree with Sandi, above, re ....you and your mom must stop trying to medicate you....and a steroid pill?
    None of the meds your mom gave you are appropriate for all people. Self medicating during such severe pain, you are guessing and can cause damage to yourself.

    You said you saw a doctor and had X-rays and MRI.
    Was this read by a specialist, or are you only seeing primary care doctor?

    Pain management /neurologist doctor was best thing to happen to me.
    He did other testing that was able to reveal more clearly, the areas of my spine causing my severe pain.

    PM doctor was able to properly prescribe treatments and properly medicate me for my situation.

    You are right about being young and in such pain.
    You need to see a spine specialist for best results.......and please, stop taking medication offered by your mother.
    Those meds were carefully prescribed for your father...not for you.

    Think about it. By virtue of age alone, the dosage of med alone, can be totally too much for you...let alone not best for you.
    And steroids are not good to mess with. They are prescribed by doc and .......carefully monitored by doctor.

    A doctor needs to decide if the benefits of steroid outweighs the risks. And there are risks. And risks to all medication.
    You do not want to risk damaging other areas, organs in your body, that you need to keep in healthy condition as you have a life with much hope ahead of you!

    Next time you have severe pain during the night, and you and your mom will not know what to do and are not expected to know what to do, ...please tell your mom you need to go to the ER. Pain levels that high need to be investigated by specialist.

    I ,myself , have needed to go to ER on more than one occasion for care and pain to lessen. That was before my PM doc had my situation under control.

    Please ask doctor to help you to properly care for yourself....the young you now suffering...and the future you who has life with a future!

    Spine-Health Moderator
    Please read my medical history at: Medical History

  • I hate seeing kids in pain. Granted you are almost an adult but I have a son about your age. Anyways, not the point. Having that much pain is awful. I know what its like to not have anyone listening to you and fixing your pain. I went through three years of that. Do you know much about what your insurance covers? I'm guessing that your mom is trying to "medicate you" because the insurance or money to pay for some of this might be higher than she can afford. That's not an excuse though. A good chiropractor can make a world of difference in back pain. I have been seeing one for a year. Its not cheap, that's for sure. Because you are almost 18 yrs old, now may be a good time to see if your mom can help you understand the workings of the insurance. Also, try to start taking more control of your care instead of your mom. Like the others said above, it is dangerous to take a medicine that is not prescribed for you. You could have a bad reaction to something whether its a dose or the type. Sometimes you don't know until it happens. That could put both you and your mom in trouble if you end up getting sick from it. I know what its like to be desperate for relief. I have been there done that several times in my life. This is a good place to start to find answers, research and just connect with others with similar pain and situations. You might find someone who has your conditions. I hope the best for you.
    Tracie C
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