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Unexplained Pain

I am retuning to this forum again to seek if any one out there have similar symptoms like me and have managed to find answers, Appreciate your help and please bear with my long story as I was suffering for the last 6 years.

Ever since my pregnancy (almost 8 1/2 years ago) I have started developing pain (mostly radiating pain to my left ankle from my upper left buttock). When I am 2 months post -pregnancy, I could not get up from the sitting position and it felt like my hip joint is locked.
With few days of rest the problem resolved and it all started two years after.

I did not have any fall or accident but I started getting progressive pain while doing the household chores. The pain used to go away when I rest. But one day it became so severe that I could not move at all and then became bed ridden.

I have consulted a orthopedic and the MRI came back with a small bulge at L4/L5. The doctor prescribed physio and I have underwent physio for 6 months. The condition has improved but the pain has never gone away completely. Ever since then my mobility and activities are limited. I was unable to stand or sit for more than 30 minutes continuously. I started getting pain everyday and the pain used to radiate towards my left ankle.

I have consulted the Ortho again but he did not prescribed anything. I have consulted a rheumatologist who has tested me for the rheumatology factor, did pelvic MRI and all the results came back negative. He has put me on pain medication for more than 6 months. I had temporary relief with the pain medication but slowly the pain medication became ineffective.

Later I have undergone 3 SIJ injection, 2 bone scans and all of them came back negative. I have consulted a sport physican and he suspected the problem could be SIJ and prescribed core strengthening exercise regime. I have undergone Physio for more than 2 year with no benefits. In the beginning I had a good relief but afterwards the pain became worse.

I have undergone acupuncture sessions for 5 times and the outcome was not fruitful.

I have gone for the BMD test in December 2013 and this is the only test that has come back positive. My left joint is in the osteopenia range. I am also taking Vit D and Calcium supplements ever since then.

Later I have consulted a musculoskeletal specialist who reckons my pain is not coming from my SIJ but due to the laxity of the tendons or muscles around the SIJ. He did not believe the osteopenia in the left Hip is not the cause. He has recommended Prolotherapy and I took three Prolotherapy injections. Again I had relief with the Glucose injections but the improvement was only temporary. Doctor later recommended to do the back exercise routing to strengthen my back. I am undergoing the back pain exercise for more than an year now.

I get temporary relief after doing the exercises but overall my condition has not improved. I could only do limited activities in a day such as can only sit in a back supported chair for around 20 mins, walk slowly for maximum of 15 mins and cannot bend forward. I am only 35 years old female and this condition is making me worse and depressing.

I do not understand whom to consult now as it looks like I have explored all my options with little success. I also don't know if I am consulting the right specialists.

My worry is if my diagnosis is correct then why I am not seeing any improvement and my limitations have not changed.

I would like to find an answer to my problem and would appreciate if you can advise me if any one have experienced similar symptoms and resolved the same.



  • dilaurodilauro ConnecticutPosts: 9,848
    have exhausted all standard medical practices.

    With all tests coming back negative and no real improvement from various treatments, you might have to step outside the box a bit.

    Eastern medicine practices have been in place a lot longer than our normal western approaches. Consider that almost all eastern practices do not use any chemicals or compounds. They rely more on natural ingredients and methods.

    Aroma therapy combined with music relaxation has a very positive effect on me. That is just one avenue.

    But, since nothing has worked for you, you should look into alternative treatments. You might even want to discuss this with a psychologist. They may have other options for you.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • itsautonomicitsautonomic LouisianaPosts: 1,806
    edited 06/05/2015 - 2:49 AM
    Even though it seems like you have exhausted "standard" medical options your condition does not sound standard so with that said there are so many options medically left. You need to understand what the problem is so it can be properly treated. What is the actual diagnosis and what factual evidence did the dr give to supoort this, not what dr thinks it could be there is often huge difference in what dr thinks and what is actually going on if evidence not there to support his opinion
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • PlumbTuckeredOutPlumbTuckeredOut Philadelphia, PAPosts: 325
    edited 06/07/2015 - 5:16 PM
    I was initially hurt when I was 8 years old and I'm 48 now. I only saw a pediatrician once when I was young about my back. He said, "Take a hot shower". My parents felt that my injury was a plot to get out of something- I'm still not sure what!

    When I was 18 I started in earnest to get help for the excruciating pain. I went to doctors and surgeons and ERs and for x-rays. There was no relief until I was 32 and a neurosurgeon happened to see me in the ER and I had an appointment the following week supposedly with his partner. That night they did surgery and I felt immediate relief. Back then there were not text book terms for what that doctor had done. Looking at the old records (the neurosurgeon has died) is seems that I have several laminectomies and a allograft.

    When I had a doctor now explaining these old records to me he said that what I had done was not a "procedure". Now I understand but I didn't back then. While I was in pain there was no way for the doctors to image it and no textbook procedure to treat it. Unlike on TV, doctors are not permitted to open up a patient and rig up a "fix". In my mind I think it's because insurance companies wouldn't like to pay for something without a "billable" number!

    It's frustrating but we have to accept that doctors cannot do all things. I have another condition and I had to figure out myself what the cause was! I needed to be meticulous in noting symptoms, dates, intensity, what I had done, what helped. I needed to be able to tell the doctors everything they could not use their own senses to see. In the end, we are our own best physicians.

    Two roads diverged in a wood, and I took the one less traveled by...... (Robert Frost)
    I still don't know if I should have taken the one that said, "Caution! Dead End" (Me)
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