Has anyone experienced this ? The more we learn about my symptoms and more digging the doctors are doing it is starting to be clear I had an injury to the central cord in 2011. My degenerated neck and the headlock, wrestling that resulted in a hyperextension is likely to have pinched my cord. Central cord is also known as inverse paraplegia, which mean your arms may be paralyzed and yet the legs are fine. That is exactly what happened to me for that short moment a couple hours after the injury , which is believed to be delayed and the swelling / spinal shock caused that. It was minor since i regained use of arms shortly after , but went on to confuse doctors for 3 plus years. The autonomic stuff is believed to be the result of this. The tremors, the inability to deal with cold, the progression of neurological problems and pain, spacticity, axiety for first time in life all are common with this incomplete injury as I have met several that had it on another forum. Some from injury , some from spine surgury or herniations left to long. Reading about it is a light bulb for me and it fits to a tee hearing their stories. The crazy thing is your MRI may be clear, my neuromuscular specialist says if she showed you an MRI of one of her patients you would say thats a great spine and then she would wheel her in because she is paralyzed ,and common with spinal cord injuries no two are same. I have seen progress in many areas just with time, but also worsening in the neuropathic pain and inability to deal with temperature regulation as the injury has rewired portions of my body, breezes cause burning pain in arm. Bladder and ED still haunt me, but have seen some improvement. The small fiber neurpathy is still a mystery, the belief is it to developed with the autonomic after injury, but usually symetrical and mine is not, if you cut me in half my left side is great.
I wanted to share my updates so that hopefully some person can avoid the years I spent tossed between specialist and specialist and it definitly relates to the spine. I have a great team now of doctors and PT, and its crazy I tell them then same symptoms I told for 3 years and they know immediatly what occured based off their training and experience. All it took was finding right doctor for me. I am sad that my injury occured after I had worked to graduate but thankful because many with this do not regain use of arms. The more I understand the more I can be a little thankful. I am excited about many of the treatments ahead, steroid infusions, rewiring of autonomic system, visiting the PT place that brought that specializes in stroke and spinal cord injury who rehabilitated congress woman Gabriel Gifford after gunshot wound.
Keep searching , you believing in what you feel means everything, then finding the right doctor is the key.
Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.