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Severe, constant nerve pain

Hi everyone,
I was diagnosed with spina bifida occulta 4 years ago (I am 24) and have suffered with constant back pain ever since. I used to have occasional nerve pain in my legs but now it has gotten severe and lasts a long time to the point where I can hardly walk, along with my feet being freezing cold. I was prescribed neurontin which used to help but it is not helping with my leg pain anymore. Does anyone know if this is a sign of degeneration or if there is a simple way to find relief? I have not been able to walk or sleep and would really like to find something that helps and figure out why the pain is so bad all of a sudden. Thank you
Tashia Gorham


  • are you taking? You may need a dosage adjustment or a switch to a different nerve pain medication such as Lyrica, cymbalta, or one of the others used to treat nerve pain.

  • itsautonomicitsautonomic LouisianaPosts: 1,804
    If your feet are getting cold, and not cold to touch that is more a sign of a form of peripherial neurapthy and needs to be looked at. Are you seeing a neurologist or a Primary care physician for this? Do not take this lightly , have it ruled out by a neurologist because if it is PN the earlier the better for treatment to stop progression.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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