- all worst in the middle of the night and first thing in the morning for an hour or so, but can continue longer/start earlier
- present for 3 to 6 months
*Pain between shoulder blades, back of neck and shoulders and into upper arms. Putting arms in sleeves or doing bra up behind me gives burning/shooting pains in my upper arms. Not particularly sensitive to touch, all about movement especially in the night, turning over in bed is agony.
*Pain in centre of lower back after sitting for 30 mins or so. Shooting pain in centre lower back when standing up
*General difficulty standing up from sitting. Difficulty raising right knee, can’t raise it higher than when my thigh is at 90 degrees with my hip, sometimes less. Real difficulty crouching down and getting into/out of car due to same right hip problem.
*Shooting pains in left wrist when opening crisp packets, unscrewing bottle tops. Weakness in same wrist, can’t open door handles or hold heavy saucepans. Starting to drop things a little more. Not swollen and not sensitive to touch although does feel warm often.
*Shooting pains in right foot, across side of foot and sometimes the top into big toe. Pain putting foot flat on floor in the morning even without any weight on it. Real pain in shins and ankles first thing in the morning going down the stairs and walking around for about an hour or so. Walking helps but then pain can worsen after 30-45 minutes. Swimming helps but doing ‘kicking’ feet in water gives shooting pains in foot.
-ESR was slightly raised, then back to normal
-Regular blood work, thyroid function etc all normal
-RA factor negative
-Vitamin D slightly deficient, been on supplements for a month which have made no difference
-ANA 'strongly positive' (need to find out more specific details) and GP has emailed rheumatology for advice...
GP and physio discussions:
-RA mentioned (but no swelling in joints, RA blood tests negative: RULED OUT)
-fibro mentioned (but I have no anxiety or concentration problems)
-lupus mentioned (but I have no rash or any of the other symptoms)
-deep tissue work has some short term benefit (matter of hours) before symptoms return to 'normal' ie pain continues!
-latest physio tried to simply blame posture, which I refuse to accept that it is.
-paracetomol all throughout the day has little effect but slightly takes the edge off.
-cocodomol in evenings helps a little but I can still feel the pain and doesn't allow me to get back to sleep
-tramadol turns all the burning pains into dull aches which is much more comfortable... but I still can't sleep!
Does it sound like fibro or auto-immune or something else?
What should I try to help ease the pain? Swimming... exercises... painkillers?
What should I say to GP next?
Oh right, this is like a thing now.