I've been suffering with chronic pain for a very long time & my husband has been suffering right along with me! I do everything I can to manage my pain but my level of functioning isn't particularly high. I can't sit through a meal really. Standing for any length of time is agony....if the person before me at the shops checkout has a problem or 'price check' I start to go white, flock sweat, nausea etc. & doing anything different from the very limited 'normal' will leave me dealing with increased pain for a week which is very hard with young kids to take care of all the time.
I know I'm not the only one here living with there kinds of problems. My question is what do you do as a couple? I'm talking date night, fun, excitement? We went to one of those dinner & a movie type cinemas & because of the big low comfortable chairs it worked! Of course I hurt but that wasn't the focus (maybe when I had to stand-up) but my pain was pushed to the side-lines for a couple of really nice hours.
We don't have family or friends to watch the kids so any alone time will involve using a baby-sitting agency & the expense involved (& stress of a stranger. If anyone has any recommendations?) so running off to New York for a romanic weekend is impossible.
We desperately need a life outside of my pain & the routine of my husbands work, home, put kids to bed, watch a show, go to bed. Rinse & repeat...... What do you guys do? What does your weekend involve?
I'm so exhausted with my pain & the kids that all I need to do is rest at the weekend. Do you feel the same? How do you motivate yourself to do more? Do you do stuff every weekend? Am I just thinking 'the grass is greener' & everyone else has discovered fantastic spiney activities?
Please help & share! ;-)
Osteoarthritis & DDD.