I'm reaching out to various back and hip forums in hopes that someone has/had my symptoms and got an accurate diagnosis. I realize we are all different but after several doctors and multiple diagnoses as well as a failed surgery, I'm taking my own action to try and get me in the right direction.
My Symptoms: Sharp Stabbing pain in right butt(20 years), groin pain(last two years), knee pain(last year) - NO TINGLING, NO RADIATING DOWN LEG
First Onset: 26
Activity: Semi-active 3 miles running each day (last 17 years); No activity (Now)
About 26 years ago, I lifted some heavy furniture and had the first instance of an "episode". The "episode" can cause my lower back to hurt. I'm figuring this is due to other parts of my body trying to compensate for the pain.
26 years ago my diagnoses were (so much for second and third opinions):
Neurosurgeon - herniated disc, need immediate surgery
Osteopath - herniated disc, need immediate surgery
Orthopedic surgeon - Piriformis syndrome with entrapped sciatic nerve
Orthopedic surgeon - Fascitis Arthritis
At 26, I wasn't about to have back surgery because I read the long disclaimer from the neurosurgeon about possible paralysis. Also, I went to forums and read so many countless entries about people either not being "cured" or ending up worse off. I got an epidural injection which helped me out of one really bad episode but didn't cure me from having them pop up every now and then. I tried acupuncture and finally ended up with chiropractor who helped me get out of the episodes when they happened.
This worked for 20 years. About 2 years ago, I started getting groin pain along with the stabbing back pain. I also was getting "episodes" more frequently so I decided to try the medical field again. Ha! I was given physical therapy and that didn't work. I was told there was nothing wrong with my back. I decided to try an A.R.T practitioner who ran competitively. I was diagnosed this time with a torn labrum and had hip arthroscopic surgery. Guess what? Still had an "episode" with the groin pain.
So since I felt that the sharp stabbing pain may be my sciatic nerve being pinched, I researched the best doctors. I ended up going to Wisconsin (May 2015) and got a negative Provocative EMG. So now I know I don't have piriformis syndrome.
I said to hell with it and last week I started to do leg exercises with 30lbs on the machines (leg press, hip adductor/abductor). I also hopped on the treadmill. I got the tightness (best way I can describe it) in my butt that usually precedes an episode. Don't say stretch - I've stretched galores and it doesn't help. I figured I would let it heal. Started this week on Monday again but didn't do any running and as I sit here I have the tightness again. I am going to go again tonite and do the weights because I can't live my life not being active to free myself from the pain. I've gained 50lbs, I'm frustrated with Doctors and I refuse to live out my live from now at 48 years of age to when I die in pain or fat. So I thought, why not describe my symptoms on a forum and maybe just maybe someone had the same pains and symptoms and can point me in a direction that I can research further and go to a Doctor who will get this fixed so I don't have to limp around with mind boggling pain that takes my breath away.
Oh, one more symptom that I noticed as of late is that sometimes, not all the time, but sometimes I will go to take a step forward with my right leg and the sharp stabbing pain will happen as I'm moving the leg forward. I will stop obviously because of the pain and put my right leg back. When I do so there is no pain.
Here's hoping and thanks for reading and possibly replying.