I would be extremely grateful for any advice whatsoever in regards to the following.
I've suffered badly with chronic pain in upper & lower back for over 5 yrs, but only recently had steps taken to diagnose the problem through my own gp as the pain management clinic were doing nothing to help
I was scheduled to have an MRI scan approx 2 mths ago but before that had been done I was extremely worried about something strange that happened one morning when I woke up,
I have always suffered from mild to moderate incontinence ie; when coughing or sneezing etc but always had ample notice to get to loo in time. This morning I felt the sudden urge to go to loo only to find that straight away I lost control & hadn't gone 2 steps?
This was so sudden & continued to happen through the day so next morning I rang my gp & got an appointment straight away, my gp examined me and contacted the consultant I was due to see to discuss the scan & asked for an immediate one to be done.
I had it & a wk later my gp got me in to discuss the results, she told me there was arthritis at the top of my neck & a curvature of the spine. Also that 3 discs at the top were bulging, she then went on to say that there were 4 more of these discs at the lumber part of my spine which were in her words "much worse than the top ones". I asked if that was the actual cause of the severe pain & wether it was the reason the pain was/is getting worse every day? She said most probably & that as they were almost touching if not already it could have a lot to do with the nerve wall that they were surrounded by!
I asked what that meant & what could be done & was told the surgeon may need to cut the excess bulge off. Also that there were several other options that the consultant would discuss with me when I saw him.
This I did a few WEEKS later & I could not believe the cold uncaring attitude I was met with! I purely believe it was due to the fact that it was a bank holiday & he was the only 1 working, with a waiting room full of patients. I observed for 25 mins 9 patients going in & leaving within that time!
So when I went in he didn't give me any time to say a word and went on to say there were some herniated discs but none were of any threat or even close to any nerves & as there was no nerve issues there was nothing more he needed to do so was discharging me!!
He then said thank you & the nurse will see you out! So I spoke for the 1st time & said I didn't understand why he was telling me the opposite of what my gp had told me & asked if he was implicating that she was lying? With a smirk he replied that that would not be the professional thing to say. I asked him then why my incontinence had so hugely worsened overnight & also why for the prior 2 mths had I been limping due to feeling like I'd hit a nerve suddenly and repeatedly felt that way for hrs at a time? He said there was absolutely no proof of any contact with nerves and that my incontinence had nothing at all to do with my discs. I asked if they were not the cause of the chronic pain or the worsening pain every day then what was?
He said I should ask the pain management clinic??? I told him that's where I started in my battle to find the cause of my pain & they couldn't answer that ? I asked for a 2nd opinion and gave him the name of another spinal surgeon ( recommended to me by a friend who'd been going through same but with only 2 discs & had gone through surgery successfully) He agreed to this and I'm now waiting for an appointment to arrive.
I am continuing to feel more pain daily, have been to see a physiotherapist & am so lost and confused with still not knowing what is causing my pain & why it's getting worse?
On a scale of 1-10 my pain is constantly at 10. Can anyone give me some advice as I'm so afraid & don't know how much more I can withstand? I'm already taking lots of medication including Tapentadol, Morphine slow release capsules, Morphine oral suspension & zopiclone sleeping tablets.
Thank you very much.