Just to try to summarize as much as possible, approximately a little over 4 yrs. ago I started having shoulder and neck spasms to the point of not being able to move my neck or arm much for days. I would go through these flare ups periodically and then return to normal. As time passed, they became more frequent until they were almost every other week. I was barely able to do my job. Last year I started going to a chiropractor and started getting help with it. The flare ups continued but I was getting some help with them. The chiropractor ended up ordering an MRI and found that I had a severely herniated disc at C5/C6 that was compressing the spinal cord. C4 and C7 was bulging also but not yet herniated. I was referred to a neuro spinal surgeon and I had surgery to fuse C5/C6 and take the pressure of my spinal cord. SInce the surgery I have had severe headaches and continued nerve pain in my arms and shoulders. I was put on gabapentin and cyclobenzaprine for the pain. I was also put on a round of steroids and referred to PT. I went through months of PT until that ran out in May when my insurance will no longer pay for it. The PT was getting to the end of the treatment with no more ideas anyways. I do my exercises that I am given. I have been seeing a neurologist since January and we have been trying to adjust the meds and its pretty much been trial and error. She added nortryptiline and rizatriptaline a few months ago and recently added topirimate to the long list of drugs that are really not working all that well. I have headaches all day everyday, neck pain, arm pain and my arms, hands and feet are constantly falling asleep, even when I am walking. About a month ago I started seeing my chiropractor with my neurosurgeons blessing with the condition of being extra careful with my neck. Well, Yesterday after having 5 adjustments, my chiropractor told me that if he doesn't see any improvement in the next couple of adjustments, he doesn't see any reason for me to keep going. I just feel like everything is just coming to an end. The neurologist is running out of ideas.
I have a lot of the classic symptoms of fibromayalgia but the neurologist said I was already on the same meds that they would prescribe for it anyways and the tests are expensive. I really am not sure where to turn to or what to do. If I should go to my neuro surgeon again and ask them to look into the pain. Most of the pain is across the shoulders and at the base of my skull. There are several trigger points across the shoulders and pressing at C1/C2 that cause the pain to flair. I am allergic to steroid injections so this seems to complicate things. I think I really need to get an MRI to see whats going on.