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Spine issues coupled with MS

texan1400ttexan1400 Posts: 2
edited 06/22/2015 - 7:47 PM in Chronic Pain
I am a 63 y/o male. Severely injured in car wreck in 1997. 10 herniated discs. C-3,4,5 inoperable with discs pushing on cord. Told would never walk again. Got past that and walk with cane. in 2010 diagnosed with some other chronic disease where everything in spine grew back together in wrong place causing scoliosis and neuropathy. 2011 diagnosed with MS, which may have had long ago, but doctors were looking at obvious.

Pain level with pain killers over last 15 years has been about a 7 for a normal. Pain killers increased when they quit their effectiveness after extended use. Did not know at the time, pain killers with my age brought my testosterone to almost 0. On androgel for that.

Tried Lryica for severe leg pain related to MS. So severe that I can go to a 12 pain level and be in the ER.
VA won't pay for Lyrica which I was at 600 mgs a day.

Now MS doctor has me on 3,000 mg of Gabupentin which sometimes relieves leg and spine pain. Side effects-sleepy and legs won't hold me up at times.

Physical therapy hurts me.

Yes, been through the L-5 S1 pain with severe sciatica. Chiro relieved that years ago.

I have been reading a lot about what many go through with pain and depression and did not realize my conditions cause deep depression. I find myself in deep depression that has lasted for 18 years!

I am concerned about this depression,. My depression does not cause me to want to hurt anyone or myself. Because of my limitations and the attempt to do simple things like walking and find I can't, or doing what others would consider mundane routine chores, I simply can't. I find I don't sleep well with these issues and if it wasn't for the side effect of Gabenpentin, I probably would get not sleep at all.

What kind of doctor do I go to for this?

I have VA health care. My primary doctor quit the clinic and I have no primary to refer me at this time, but hopefully they will get a full time primary shortly. The VA is very frustrating, months between appointments. 3 months for a cancer follow up. 3 months between MS doctor's appointments.


  • LizLiz Posts: 7,832
    edited 06/22/2015 - 7:46 PM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 5,476
    Although I do not have MS myself, one of my best friends does and has been dealing with it about 20 years. Friend is 59 years old.
    My friend has recently been raving about recently new treatments that have been effective for treating the symptoms of her MS.
    i thought that may be encouraging to you, esp re, never give up the hope!

    Although chronic pain is often accompanied by depression, it's not to be considered normal.
    I received referral for psychiatrist. I did some talk therapy for years and also anti depressants and anti anxiety meds.
    Many people may only need while they are dealing with the transitions happening in their life, like pain and associated issues.

    I have decided to continue with the medications. I feel stable! I see psychiatrist for med management every three months.
    My problem thoughts and my negative self talk has been retrained. I have never felt this good within me in a very long time!

    Did your primary doctor prescribe your pain meds? Or are you seeing pain management doctor?
    My primary tried to work with my pain about two years then made referral for pain management doctor.
    Best thing for me!

    This site will help you to realize you are not alone.
    Hang in there!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • itsautonomicitsautonomic LouisianaPosts: 1,816
    edited 06/23/2015 - 7:09 AM
    Did you have lesions on brain ? Is that where the MS diagnosis came from ?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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