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Neuropathic Pain

trevorleckeyttrevorleckey Posts: 1
edited 06/30/2015 - 6:19 AM in Chronic Pain
I have been diagnosed with chronic referred pain after being paralyzed as a result of a motorbike accident. I'm paralyzed from T12 with an incomplete break. I have tried numerous different medications however none of them have been successful. Some of the medication I've been on are listed here: 20mg Ompreazol Morning and Evening, 300mg Lyrica Morning and Evening, 60mg Duloxotine Morning, 2.5mg Dulcolox Pearls in the evening, 20mg Imiprainne three times daily, Detrusitol XL 4mg once daily, Desmopressin 100mg twice daily, Zolpidem 10mg once daily, Diazepam 20mg once daily, Amitriptyline 10mg morning and evening, Ketamine 10mg four times daily, Pethadine 3mg four times daily, 5mg methadone four times daily, zimbalta, codroxamal, oxynorm, oxycodine. I've tried a baclofen pump, morphine pump, electrical stimulistion of the spine. I've tried 47 different tablets these are just a few I can remember. I've been for treatments in Düsseldorf and the Walton centre in Liverpool however both were unsuccessful. Anyone else who is experiencing this or knows anyone in the same situation, please get in contact. My mobile number is: 07770433397.

Welcome to Spine-Health

One of the most important things that need members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

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Providing answers to questions like this will give the member community here a better understanding
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It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : -6/30/15 12:22 est


  • itsautonomicitsautonomic LouisianaPosts: 1,807
    neuropathic pain occurs in the majority of people after a paralyzation incident or really any injury to the spinal cord. It is notoriously hard to treat as pain meds don't work great on it and no medicine has yet to show great benefit neurolgically for SCI. Its a very complicated subject because its based in the CNS .
    I would suggest another website with forum dedicated to SCI, no offence to spinehealth ,but the people here are not the best for what you are dealing with. I will PM you the site and you will see the majority of them suffer the neuropathic pain after their spinal cord injury and they can offer some advice and you will meet others like yourself. With spinal cord injury the damage can be far reaching in the central nervous system and debilitating to quality of life, I wish you luck. I am a central cord injury patient , but I regained function in arms yet the neuropathic pain that arose from it is what I struggle with the most, all day , everyday . Its unremitting.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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