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Searching for help - synovial cyst L5-S1

BethG23BBethG23 Posts: 2
edited 06/30/2015 - 10:31 PM in New Member Introductions
Hello -
My name is Beth - I live in Oregon with my husband and two adult children.
I have been diagnosed with Fibromyalgia about nine times, the first time being in 1995. I never believed that I had it, because I never had all the horrible pain that I always heard that went along with Fibromyalgia. My back would just hurt if I slept on my stomach or did strenuous things. In August of 2013 my thyroid died. Everything went downhill from there. My Fibromyalgia kicked my behind in the worst way. My EVERYTHING hurt. Suddenly I find out everything is fibromyalgia. I never knew. TMJ, IBS, Carpal Tunnel, Anxiety, Insomnia, Depression, Dry eyes and mouth, Change in eye sight, Fatigue, Memory issues, Headaches...etc. I can't even remember them all right now. Ever since then, my body has just gone down hill.

November of 2014 I started to have pain in my right hip. It radiates down my right leg. Sometimes it feels like it is in my bones and like a lightning bolt striking through my entire leg and hip. It strikes through my entire back and to my left hip and sometimes down my left leg to my left knee. The pain gets worse at night, when the weather changes the slightest bit, if I get near anything cold, if I walk too much, if I lay flat, and if I drink any alcohol with a high alcohol percentage. It has taken the Doctors since November to finally diagnose me. I have had three MRI's, two Xray's, seen about 6 specialists, been given a cane an a handicapped parking permit and been told that I just have a pulled muscle in my butt., then that I have SI Joint Dysfunction, then a herniated disc. Now...FINALLY...I have answers.

I have a synovial cyst pressing on dorsal ramus of R L5-S1 nerve root. The Doctor said he wants to see if the anethesiologist will consider giving me a steroid shot in that area, but he said that there are risks involved, and that he is not even sure that the anesthesiologist will agree to it, as where mine is located is in a very hard to get to area. Then he said the next option would be surgery to have it removed. Which, to be honest, scared the heck out of me...because he said it was an open surgery, that it could not be an orthroscopic surgery....and that I would have to go to a spine surgeon. Having it removed, sounded like the best plan, as the shot is not guaranteed to work and I am dying to get this pain to go away.

I worried about this entire thing all night last night. Then I googled "synovial cyst L5-S1 nerve root" this morning in an attempt to educate myself a little more on this thing in my body that is causing my such great pain. That is when I found this forum. I found some hope here. On a day when my pain is hovering around an 8...and I have no choice but ti push through my day and work, I really needed the hope that this page gave me. I am so happy to have found it. Right now....I am really hoping to connect with others who have had this same surgery and hear how things went for them. Then...I am hoping to learn more about all the other ailments that I currently suffer from.

Nice to "meet" all of you.


  • SavageSavage United StatesPosts: 5,476
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  • Hi. I went through a diagnoses of fibromyalgia that didn't 'fit' for years too. Turns out most of my problems were my bodies reaction to severe pain. I got the pain managed & all the other 'stuff' went away, mostly. I know it sucks to have to keep pushing to get answers.
    I've got cysts too! My surgeon says that 'usually' the pain goes away when you sit if the cyst is the cause of the pain. I don't know! Turns out I've got sooo much wrong with my spine that I can't tell if one pain goes only to be replaced by another!
    To my knowledge cysts are symptomatic of underlying structural damage & there's a whole host of tests they can do to diagnose it. The concern being...you have painful risky surgery to remove the cyst but the trouble causing the cyst remains & just causes another cyst. Have you had this conversation with your specialists?

    Anyway, just wanted to say hi. We've got stuff in common! I've got osteo-arthritis & share many of your symptoms. The weather has been so irratic this year, its a nightmare. Ugh! It sucks doesn't it? ;-)

    Hope to see you on the forums.
    Osteoarthritis & DDD.
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