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angieroseaangierose Posts: 1
edited 07/01/2015 - 9:15 PM in Arthritis, Osteoarthritis
I have chronic osteoarthritis through my whole body including my spine, plus other bone abnormalities. I have had chronic pain since I was 12 (18 yrs ago). Doctors have never taken my pain seriously until recently when I was properly diagnosed. I am now on Endep, Lyrica and Gabapentin which together helps with all my nerve pain. But even strong pain killers didn't help with my joint and back inflammation. I had heard about people having success with Prednisone but I had never really considered it for myself because I'm still young and had heard of all the horrible side effects. My pain had been causing me to become deeply depressed. Doctors were treating me like a drug addict whenever I went to ask for a prescription. I was getting to the point of being completely crippled and being a carer to my disabled son, crippled was not an option. While looking for a prescription one day I found a bottle of prednisone that was prescribed to my partner for her chest infection. In desperation I started taking the 20mg tablets daily. I was about to give up by the 5th day when all of a sudden my pain started reducing! By the 7th day I was almost pain free! I was getting stuck into the housework and playing on the floor with my son! I was ecstatic! I've now been taking them for about 2 weeks. The only side effect so far has been some calf pain in the morning. That's nothing compared to the pain that they are taking away. I know that my face will probably swell and I have read all the other long term use side effects. But I am totally willing to take the risks. I haven't felt this good in years! Now I have a few questions... do I ask my doctor for a prescription? He may say no. I can't tell him that I have already been taking them. I'm terrified about asking. I would have to say that my pain is really bad and I'm a terrible liar. Also what if he gives me a lower dose? Will my pain get worse? What dose should I be on? What will happen if he won't give it to me? Are there withdrawal side effects? Is there anything I can do to help or avoid my morning calf pain? How can I convince my doctor that I am serious about getting on the prednisone? Any other helpful advice would be greatly appreciated. Thank you.


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Spinal stenosis since 1995
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  • dilaurodilauro ConnecticutPosts: 9,868
    First and most important. You should never, never take anyone else's medication. If any doctor or pharmacist discovered this, you could be immediately put on a black list and you would have trouble filling any prescription. Besides, it could be very dangerous and fatal in some cases.

    Second, Why are you taking Lyrica and Gabapentin(Neurontin). They are basically the same medication. Used for nerve pain. I have never heard a doctor that would prescribe both of them at the same time.

    As far as asking for a prescription of predisone. That will be very hard. If you d on to intend on telling him the truth, I am not sure how you would go about it.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Hey! I was about 12 when I was first diagnosed with osteo-arthritis. I was very lucky in England with my docs, most consider it an old persons, wear & tear problem. It must of been terrible not being supported for all of those years. I can remember how very frightened I was.

    I have to agree with Ron. I don't usually lecture other people, we all get desperate but that was such a dangerous thing to do. Ugh! The thing is, when my pain gets really bad & I just can't take it anymore my doc gives me a course of strong steroids & it does really help. I usually say 'honesty is the best policy' with docs but in your case I'd say you went to an arthritis forum & kept reading it helps. I know I shouldn't advise you to lie but I can't see any other solution. You DO NEED health checks to take that kind of med! You usually have an intensive pack & then let your body rest for a while. I DO NOT take it all the time!! It needs to be under doctors supervision. Please, please be careful. You MUST titrate down off of the meds, not suddenly stop. Do you have enough left to do that? If not I hope someone more medically minded can help or you are going to have to confess to a doc I think?

    We all make mistakes. I hope everything goes well for you. It's not a permanent solution. The idea is to get your pain manageable so you can use other modalities to cope. I hope you stick around on the forum. Your situation is far from hopeless. There's lots of help & support. I don't mean to be mean. Please don't leave the forum through offence, it's been such a help for me ;-)

    Have you considered finding another doc? Ron is right Lyrica & Gabapentin are fundamentally the same med & I can't understand anyone being prescribed BOTH. Usually they pick one & change the dose.
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 07/04/2015 - 5:40 PM
    Sorry! If you want to talk about living with arthritis & kids I'm here ;-)
    Osteoarthritis & DDD.
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