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Chronic coccydynia

Jessi68137JJessi68137 Posts: 1
edited 07/04/2015 - 9:35 PM in Chronic Pain
I have been dealing with chronic coccydynia for over 3 years now. I have seen 2 neurosurgeons and 2 orthopedic surgeons and 1 pain management specialist. I have received conflicting opinions and what I should do to find relief. From having my tailbone removed to nerve ablation to nerve blocks. One surgeon will be highly for one procedure and completely against another. I've had a nerve block that did absolutely nothing but cause me more pain and I'm against having my tailbone removed since it seems like such a barbaric surgery. I take ibuprofen and Vicodin daily just to be able to tolerate the constant pain. I get the most relief from trigger point injections but it only lasts for 48 hours tops. I'm only 34 and have a demanding job and I feel like I'm at my wits end on finding something long lasting to eliminate this pain. Does anybody else have this condition that found ANYTHING that helps with this pain? I want to be normal again. Thank you so much for any input or to point me in a direction I might not know about.


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Spinal stenosis since 1995
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  • SavageSavage United StatesPosts: 5,476
    I'm sorry for your situation. I am unfamiliar with it, but it sounds you're in difficult position to make decisions with conflicting doctor opinions.

    There is a search in this site, upper right on page.
    You may want to type in your concerns and you may be led to older posts, article, and or videos.

    When I search, I usually find I have more questions. I may continue to search, or write questions down so I able to bring to doctor office with me.

    I wish you the very best.
    Please keep us posted with how you are doing!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Hi. If the trigger point shots help have you asked about Botox & steroids? I know some insurance plans won't cover them but many do. The Botox lasts much longer for me. It's best if I ice straight after & then do my stretches religiously. My problems are different from yours though.

    When I'm confused by docs opinions I get yet more opinions! Hopefully you'll find a board certified surgeon that you really trust. Not saying you need surgery, they're usually the best specialists to advise you on the best courses of action.
    Osteoarthritis & DDD.
  • Your story is much like mine with the exception that a recent procedure of ganglion impair injections (done with lidocaine) was the first thing to even put a small dent in my pain. I'm scheduled for another round of injections using Marcaine this time instead of lidocaine since its supposed to last longer and be stronger. I also see a neuro-muscular therapist who I found in an alternative med magazine and while insurance does not cover her, her combined techniques of manipulation (for coccyx issues they have to manipulate you from inside of your anus which is uncomfortable and kinda gross but after you suffer enough pain you do anything that may help and it will help), assisted stretching, rolfing, cranial sacral work and the list goes on. Sessions last an hour and cost me one hundred American dollars. I've done extensive research and tried every procedure ever offered but ganglion impair injections (with fluoroscopy) and seeing my neuro-muscular therapist have been the stand out things that have helped me other then pain meds, which I am currently trying to stop taking since long term use has so many bad side effects like short term memory loss. I wish you luck and hope.
    Jamie L. Burt
  • Hi, what symptoms do you have? I have been diagnosed with coccydynia following 9 months of lower back/ pelvic pain. I'm not convinced... Diagnosis was vi pressing on my coccyx which was very tender... It's just I have many other symptoms including ischial tenderness and a chronic ache internally across my sacrum/ coccyx, buttock numbness, leg pins and needles, just general chronic pain and shooting pains into legs and around coccyx. Did you have any other symptoms which didn't involve our coccyx?
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