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adjusting to live with pain

edited 07/05/2015 - 1:38 AM in Chronic Pain

I am 23 years old and I become ill over xams 2015. I am unemployed as I lost my job due to this. Its been hard adjusting to this. I have pain in all my joints which is unbearable at times. I volunteer twice a week at CAB (Citizens Advice Bureau) but for thedays afterwards is hard.

I am wondering if any one has any tips or hints which may help.

Thank you


Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
    - What Conservative treatments have you had? Which ones?
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

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  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
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What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

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--- Ron DiLauro, Spine-Health System Moderator


  • sandi123ssandi123 Posts: 456
    edited 07/05/2015 - 4:47 PM
    Or illness that is the cause of the pain? Have you consulted any doctors or had any testing done to get a diagnosis?
    What recommendations have you been given for treatment?

  • If you are in the US, you may want to look at working with the Dept of Vocational Rehabilitation. They don't treat or diagnose but they can help with accommodations or retraining you for a different type of job.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 07/06/2015 - 5:48 AM
    It's great that you volunteer & stay connected. Chronic pain can be so isolating. It sucks that the increased activity makes you pay for it for day's after. I'm the same! The important thing is that we don't surcome to the fear & not do anything because of our pain. I truly believe that distraction is one of the best pain management tools we have. ;-)

    Are you sure there isn't something you could change at work to make it a bit easier on you? Better chair, pillow. Taking walking, stretching breaks? Sometimes we get stuck in a pattern, a way of doing things & little adjustments can help.
    I have a prescription Ketamine, lidocaine (& muscle, nerve compounded meds) which is great as a little rescue when I'm out. It doesn't stain clothes or smell or anything. I don't know if something like that could help you? Many people I know have purchased a SI belt from Amozon but you say your pain is wide spread? Do the little 'tricks', heat pad, aromatherapy, massage etc help you at all?
    Osteoarthritis & DDD.
  • Hi

    Thank you for the replies. Ive had many tests but they think its abnormal pain condition or fibro. I am having more tests on Wednesday of this week.

    My doctor has given morphine patches but I unable to use them due to having sensitive skin. She is meant to be giving me other things but shes waiting for Wednesdays. Other than that she has been rather unhelpful. I think a lot of it is age based honestly.

    it more about keeping my sanity honestly as I can't watch tv all day. I fully agree with you. I cant let the pain win. Im not really looking for work at the moment honestly as bad as that sounds. Ill have to think of that when I am looking. At the moment living on ESA.
  • I just wanted to chime in to say hello and ask if you take any medications or do anything to relieve anxiety/stress/depression. So much of my problem is anxiety, and I don't see a bright future for myself, but the Cymbalta (and Lyrica) I take helps me get through each day. And just getting through a day can be a major accomplishment.

    The fact that you have a fighter attitude toward your pain is awesome. I suffer from long stretches of "insanity," but in the moments of clarity, I see us as such strong people for what we've endured.
  • edited 07/06/2015 - 9:36 AM
    I have in the past and I am considering to speak to my GP again. Its just getting to the GP without my mum. I'm not going to complain as in many ways I'm lucky. I have slight anxiety and I can understand why you feel like that. On my darkness days im in the same state of mind. Thats part of the reason why I volunteer it makes me feel like Im doing something.

    Most of my insainity is due to pain meds. Thank you for your kind words. I wouldnt say Im a fighter.

    I hope things get better for you Bman. Btw your profile photo is very cute
  • SavageSavage United StatesPosts: 5,427
    You are very young to be aware of the benefits of volunteering! It does uplift one's spirits!
    And you are distracted from yourself and pain if only for a time while actively helping another! As was mentioned above and I find that benefit also.

    You seem wise beyond your years!

    I totally get the wanting to talk to doctor alone, without a parent. When my son was young and had issues, not spinal, the doctor would ask me to step out to be able to speak with my son alone.
    It would maybe benefit you to put a call to doctor before your appointment to see if she would be able to help you out in that way.
    If that is something you would be comfortable with.

    For other ideas of coping, since you mentioned not wanting to watch tv all day, there is a post called__ the blend__ you could find with __ search__ on this site, upper right on page.
    It takes into consideration that there is more to coping with pain besides medications.

    Some of the ideas you may want to adjust to your age, but it may trigger ideas that you may find helpful. :)
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • edited 07/06/2015 - 11:21 AM
    Hi Savage,

    Thank you for your support. I love volunteering. I love helping others and I feel like I'm doing the community good instead of just sitting on my arse. I'm starting an new voluntary project as an advocate for parents with children with special needs and disability. I did a law degree so it helps to. What volunteer work do you do?

    I didnt even think of doing that. I'm going to try that as I think it needs to be dealth with.
  • SavageSavage United StatesPosts: 5,427
    edited 07/06/2015 - 6:20 PM
    You say law degree and it being useful. That's so great to use your skills while volunteering.
    I found that is how it worked in my life, too.

    one of the things I used to be was an interpreter for the Deaf.
    One of my sons is deaf so I went through training program while he was young. ( out of self defense to keep up with what he was talking about ! ) :)

    When my medical issues first started, they were not as debilitating to me..just on days here and there weekly/monthly.
    So, I enjoyed volunteering for deaf adults and or children in their special occasions, activities and or church, as it was not always easy for them to pay for interpreter service.
    One of my favorites was a kids party with two clowns. I would sign what the clowns said and their silliness and jokes, and also give voice to what the children were signing ....how they were responding and their many questions!
    It was hysterically fun time for me!

    I also used to be a nurse, a very long time ago, and later one of my favorite was volunteering at a Children's hospital.
    My work was to roll a cart with a computer, and books, and go around to different children and help them with their homework.
    It was esp enjoyable when I let them do the teaching to me about the different kinds of games!

    Now I am more housebound, also increased pain keeps me in bed often. So I'm much more limited. I've also had many other medical issues. You can tap on my name to get an idea, if you wanted.
    For now, I very much enjoy being a member on this site...being part of the welcoming to new members and trying to be of assistance to members I feel I can relate to...in the sharing of experiences with each other.

    In still remembering the serious illness of the children in the hospital and their serious affect seen on their faces, I can still feel encouraged by their innocence and the way they faced their painful situations.
    Thinking of their good attitudes at such young age, brings a smile to my face, and the way they endured, I get strength from.
    They've given me much more than I could have ever done for them.

    Volunteering seems to touch a part of one's soul that is often times neglected. Thank you for asking and letting me share those precious memories!
    Please excuse my long post.
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Savage,

    I really enjoyed reading your post. Im just about to start an BSL course strangely. How easy was it to pick it up? Your work sounds aamazing. I'm sorry to hear about your pain. My doctor thinks the pain is going to get worse when I get older. Hence why I'm trying to keep myself as busy as possible.
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