My work was outdoors. I've never been sick, I was Walking outside one day, suddenly my body felt like it was hit with a lightning bolt, my insides were having some type of spasm or tremor, you could not see this happening on the outside. Go to ER by that time it stopped and they suggest anxiety, which it was not.
A month or 2 later, sudden onset of severe burning pain from knees down to ankles while walking, I went down to the ground.
Everyday when I get up and walk to kitchen within 10 min. I have spasms or some type of tremor, a shaking in my back and legs, its as if I'm having shivering on the inside which does not show on the outside.
A year later lower back pain, as if I was towing something, pulling out of the back pain, a hard dull disgusting pain that makes me nauseated, this pain never stops, I feel it mild when lying down.
I've had just about every test starting with ultrasound of ab and legs, muscle biopsy, bone scan, nerve conduction, MRI's, last MRI about 6 mo. ago.
My PCP said I have arthritis in my back as if it were no big deal, I realize I would have arthritis in my back, anyone older who does some lifting etc after a period of none such as winter months knows to expect that, I would take an Aleve that would take care of the pain and I was good to go for next day.
I'm seen at Neurology also, I was started on Gabapentin which did nothing also Phenytoin, did nothing, I took these for over a year.
Seen Rheumy also who ran autoimmune tests, he said it has to be nerve pain
I have had injection bilateral lumbar facet lidocane and steroid, no help it made my lower back go into spasms a fast crawling sensation, enough to drive one out of their minds.
Pain has just progressed,from the leg pain and the Drs. not much help, it progressed to my back a year later.
What helps the most is Prednisone, I wish I could take a higher dose.
Neuro recently said I had Rheumotoid Arthritus and bulging discs because of C-Reactive Protein blood results ( I need to look at the reading for that to see if they differ from prev blood test) , I think I always had arthritis which wasn't that bad as mentioned above.
I am unable to walk or do anything without pain meds and prednisone, , I feel like a slave to them, I am getting too depressed now, I cannot take care of my home, its a mess and I've never been like this. I'm done in, I cannot go on like this.
I believe there is a damaged nerve in my back that started all of this, especially with the sudden onset, or an infection if Prednisone seems to help the most (at a larger dose) the Drs. are missing something.
Have a consult for another injection in back, I don't know what kind of injection yet, How can Drs. let someone go on for 3yrs with no relief? It's barbaric.
Current pain meds, Fentanyal patch 12.5 every 48 hrs, Oxycodone 5 mg 3-4 x day, Meloxicam 15 mg 1-2x, Prednisone 5 mg 2x.
Thanks for any help in advance