Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement
advertisement
Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Pain management for spinal tumour

bull699bbull699 Posts: 1
edited 07/06/2015 - 5:49 PM in Pain Medications
Hi

Got a close relative who was diagnosed with a spinal tumour around two years ago. Received an operation soon after that and has been on minimal but regular painkillers since then. I know very little on the topic but, since the pain has recently got worse, I promised I'd do what I could to research any online recommendations from a community like yourselves.

She's had radiotherapy and chemotherapy, but she is terminal and not receiving any more treatment as far as I'm aware. Like I said she's been on minimal painkillers (8 paracetamol a day apparently) but they don't seem to be cutting it any more. She can't take codeine as it makes her violently ill but any other suggestions would help.

Thanks

*********************************************************************************************************
Welcome to Spine-Health

One of the most important things that need members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.



Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?




Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.


Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
    - Provide pointers on how to make your threads / posts
    - Tips on how to create your avatar (your picture), posting images, etc
    - General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.



It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.


Specific comments :


Personal Opinion, not medical advice :


---------------------------------------------------------------------------------------------------------
--- Ron DiLauro, Spine-Health System Moderator : 07/07/15 00:53est
---------------------------------------------------------------------------------------------------------
advertisement

Comments

  • SavageSavage United StatesPosts: 5,940
    I am very sorry about your relative with the terminal illness.

    Is she keeping her doctors updated with her unmanageable pain?
    They should be able to tweak meds or change meds as each patient is so individual, it may take trial and try again, but to never give up, as comfort is first priority.

    I'm not sure where you are, but I'm in the Midwest , United States.
    For terminally ill patients, we have Hospice. It is very wonderful service and helpful to those in their last stages of life.
    Besides a vast variety of services they provide, they visit patient in their home and help keep that communication with doctor and communicate orders or changing orders from doctor to patient and Hospice RN does all she can to help facilitate those orders to provide for all that is needed.

    They will do the best for pain as that is their main goal....comfort for the patient. Physically with meds, of course, but in all ways ex.. living situation adequate or need more assist for care needed to be provided, mental, emotional, and or spiritual care if wanted. Last time I worked with Hospice, for a loved one, their services were of no added expense to patient.

    Often times, when in such pain, it is near impossible to navigate the system to receive the help needed. Hospice is professionally trained to get through the system to help patient.
    You're involvement is very helpful, also, as you search for what is best and that you are there to help give voice to your relative's situation, esp if she or he is too weak, too much pain, etc...to answer adequately for themselves.

    I wish your loved one the very best...and to you, also, as you search for best comfort measures and services available to help you see she has all she needs.

    Sue
    Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • Should be making the recommendations regarding pain medications for your relative. A discussion with her doctors regarding her pain levels and ineffectiveness of her current meds needs to be had from the sounds of it.
    It would be ill advised for any of us to suggest any particular medication since we aren't her doctors.


  • One of the best thing that you can do is to get educated on the topic. Learn as much as you can about the cancer, the treatments, the doctors involved, the support groups and anything else that you can think of. Read the same scholarly articles and publications that the doctors do. Also learn from people that had the same or similar conditions.

    I don't have experience with cancer so I can only offer my empathy with that but I do have experience with pain and pain treatment. If your relative is not ready for hospice then she will need a pain management specialist to take over the reins for pain management. I am surprised that her physician is only ordering Paracetemol. It's possible that the primary doctor and the oncologist are each thinking the other is going to take over the pain management and there is just some confusion going on.

    No matter the case she's going to need opioid treatment for pain. There are differences among them so there will be trial and error before she finds the right combination and amount. The golden spot is one that removes the pain and only gives the slightest euphoria and without tiredness or nausea.

    Make sure she starts with an opioid that can scale. What I mean by scale is that the medicine can be taken in greater dosages without much harm to the body. Cancer treatment is too complex for this thread and your doctor may have reasons that we others are unaware of. So it comes back to educating yourself as much as possible.

    Best wishes
  • Hi. I'm so sorry. May I ask what country you are in? You say 'Paracetamol' are you in England, Europe? The services available varie from country to country. My great aunt died from cancer recently. She actually went through a stage where she wasn't receiving pain meds because she couldn't tolerate co-codamol/co-dydramol (spell??) etc. there is a HUGE list of meds available to make people more comfortable. The hospice system mentioned previously is available, free of charge, in the UK. again, I'm so sorry.
    Osteoarthritis & DDD.
advertisement
Sign In or Register to comment.