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OMG am I Crazy????

(Posted three year history on introductions page)

So I have battled three years with lower left back pain, supposed SI issues and then recently went back to the Dr. (Phys Medicine) and had a new MRI done since she through she saw something on my L5 and did not believe being treated for SI joint was correct. Results are back in from my MRU and she said she doesn't see any herniations or lesions (which is great news) but it HURTS SO BAD! My foot burns, has a numb spot on the bottom, I have a cold/wet feeling spot on my thigh, terrible lower back pain and I feel like I am CRAZY.
Has anyone else been dealing with this? I do not wish having something wrong with my back, but I wish whatever is wrong would be more obvious so that I don't feel like a lunatic who has back pain with no known cause. I just feel so worn out right now.

Any support or experiences you have had would be a great lift right now... I am curious if others of you have had this type of issue.

Thanks :)


  • dilaurodilauro ConnecticutPosts: 9,877
    edited 07/09/2015 - 8:33 AM
    negative and the doctor doesn't believe there is a problem, then talk with her expressing your concern about your current pain.
    Perhaps during that discussion additional diagnostic tests will be discussed to see if there is any other way to determine what is going on with you.

    But please keep in mind, that after a number of diagnostic tests that all come back negative, the doctors are at a standstill in what they can do for you. They generally will not keep you with many medications, especially narcotics. Perhaps they will write a script for physical/aqua therapy

    Still if nothing works, you can always just ask
    I know everything comes back fine, but I am still hurting, what can I do , where do I turn, do you have any suggestions?

    Who knows? We western medicine did almost everything they could for my spine, they directed me to eastern medicine for pain relief. That has definitely helped.

    As long as your doctors believe you have real pain (many are going to pass it off as you don't really have physical pain) they should work with you in finding alternative options that will help.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Have you ever had your SI joint properly diagnosed? They do an injection of numbing agent into the joint & if the SI is guilty you feel an immediate pain reduction. Any scans of that area? I believe that specialists can have a good educated guess but without the correct diagnostics it's just a theory.
    It just seems like you were diagnosed with SI joint issues....they did an MRI to rule out disc problems....so could it still be SI? How did they diagnose SI 3 years ago & what treatments have you had? Did they help?

    I'm sorry. It can get very confusing & take a VERY long time to correctly diagnose the cause of nerve pain. There are lots of tests they can do. Best wishes :-)
    Osteoarthritis & DDD.
  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 07/09/2015 - 9:04 AM
    I'm sorry! I just found your history! I couldn't before, it's fallen onto page 2, my bad! ;-)

    Again I'm sorry. Can I clarify? Did the initial numbing shots in your SI work? For me the numbing works but the steroids never kick in & help so that pain goes away for a short time until the numbing wears off. My SI is very messed-up. Just because the steroids don't help doesn't mean that's not the source of the problem...it can be quite the opposite! The damage is too bad for the steroids to help. It's that first numbing shot that should yield immediate effects that's diagnostic.

    This has been 3 years & you've tried a lot of things. Have they done any nerve tests to identify where the problem is? You seem to of had more treatment than diagnostics. In my experience everything, even physical therapy is more productive when they know exactly what's causing the symptoms.

    I'm sorry. It's horrible when you know you're in pain but they can't find the cause. You're not crazy! Many, many people go through this type of thing.
    Osteoarthritis & DDD.
  • For your support. Luckily the doctor is being very supportive and not casting me aside. She suggested we do an epidural injection on the 20th when I see her next. I feel like we need to have a solid discussion prior to that as like said above, so much treatment yet no solid answers. She did state in her email to me the burning and wet leg feeling are from nerves, and did say we will discuss more when we meet. It is just tiring and wears you out. In regards to nerve tests, those have no been done yet and I definitely want to talk about it with her. Anything further we can do to check out what is going on would be great. I am curious too if it is something auto immune? I don't think it could be MS or anything, but at this point I don't feel like I have any clue what is going on. I also think I am going to look into some sort of counselor as I am just at my wits end with dealing with this. I am sure she can refer to someone in the pain management team. Oh, and on the SI injections, unfortunately there was no wow moment where it helped take away pin. Ther steroid definitely didn't help, and the lidocaine (I think that is what it was) was not that effective I don't think.
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