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DfordellDDfordell Posts: 5
edited 07/13/2015 - 4:14 AM in Chronic Pain
Hi,I'm new to this,I need help desperately apprx 5 months ago started experiencing bilateral foot pain no back pain.It got increasing worse to the point where I have my feet on ice most of the time,can not walk more than a few feet.Went to foot Dr had xrays,pvd studies,steroids and finally MRI of feet.Conclusion not foot problem.Then treated for Lyme even though bloodwork was neg,Put on lyrica and phentayl patch sent to neurologist he ordered lower back MRI. It showed mild-moderate l5-s1 disc bulge neurologist said its pushing on nerve to feet.Had 1 pain injection made me worse,then to ortho spine surgeon he says MRI does not indicate that finding to him.So now out of work on pain meds which help slightly and have an appointment with a neurosurgeon in 3 weeks.I have lost my life and soon my job all I can do is lay on couch there is some relief when I lay down also tried small lumbar role when laying down for about 20 minutes at which point I lost feeling in right leg from thigh to foot very scary it came back in about 4-5 minutes.I don't know what to do or where to turn they say walking helps the nerves but I can't walk ,also a lot of muscle twitching when lying down and at times 1 of my toes will curl ?Please help!


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


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    Doug Hell

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Hi. When I have a specialists appointment looming I do all the research I can & I keep a note book of questions that I really need answered. It's so frustrating to get home with more questions than answers. Remember to keep notes of the way your pain feels & how it changes with activity & different resting positions. What you said here is great! obviously not great for you but it can tell an expert a lot! Don't be afraid to tell him exactly how you feel. They need to know how bad your pain is for you. The diagnostic tests are just 1 piece of the puzzle. Sometimes it takes a really long time to properly diagnose you & even longer to find the right treatments. I know how frustrating it is. Chronic pain can really mess our lives up!
    Once they know exactly what they're dealing with there is so much more they can try. In my experience even things like physical therapy are so much more effective once they know. Advocate for yourself & push for answers. He might need more diagnostics, don't be disappointed if that's the case. It's common. Are you hoping for a surgical treatment at this point?
    Osteoarthritis & DDD.
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